Forum Discussion
Deanne
8 years agoMember
Hello @Yogibooboo
Sounds like you have had a few challenges to cope with and you probably know that support is very important, especially until you sort a few things out for yourself. This is a great place for that.
I have been on both Tamoxifen and Femara since my diagnosis. 2 years on Tamoxifen, before having my ovaries removed so that I could switch to Femara (just over 2 years on Femara now). While everyone does seem to have their own individual reaction to these drugs, I will share my experience as it may be helpful.
I had very little reaction to Tamoxifen except for some fairly major mood swings. Femara had almost a calming effect in comparison! I did have some joint/bone/muscle pain when I changed to Femara. It hit with a bang and I was pretty unhappy with it at the time. I was told that this can take a while to settle (other ladies on here and my oncologist). Sure enough it improved a lot by the 3 month mark and just about disappeared by 12 months.
A bone density scan is a good idea to check how you are situated before you start on Femara. I had low bone density to start and within 12 months it had really deteriorated at the spine and I was diagnosed with osteoporosis. In the last 12 months I have managed to reverse this and actually build stronger bones through a specialised weightlifting program. There are also medications such as Prolia that can help with this. I preferred the exercise program and think this has also helped to reduce my joint pain and stiffness.
The other major quality of life effect for me (from Femara) has been vaginal dryness. There is a good support group on here that can help with lots of practical advice on this side effect. I feel that I have found some things that work for me and while this side of life is not how it was, it is ok again now.
So, while Femara did have more side effects than Tamoxifen for me, I have found ways of improving these so that I really think my quality of life is very good. The main thing is to let your oncologist know the side effects you experience. Many times there are things that can help minimise the side effects. You don’t need to suffer in silence on here. Lots of support and sharing of ideas that have worked for others. Take care and I hope that radiotherapy goes ok. Let us know how you go. xxx
Sounds like you have had a few challenges to cope with and you probably know that support is very important, especially until you sort a few things out for yourself. This is a great place for that.
I have been on both Tamoxifen and Femara since my diagnosis. 2 years on Tamoxifen, before having my ovaries removed so that I could switch to Femara (just over 2 years on Femara now). While everyone does seem to have their own individual reaction to these drugs, I will share my experience as it may be helpful.
I had very little reaction to Tamoxifen except for some fairly major mood swings. Femara had almost a calming effect in comparison! I did have some joint/bone/muscle pain when I changed to Femara. It hit with a bang and I was pretty unhappy with it at the time. I was told that this can take a while to settle (other ladies on here and my oncologist). Sure enough it improved a lot by the 3 month mark and just about disappeared by 12 months.
A bone density scan is a good idea to check how you are situated before you start on Femara. I had low bone density to start and within 12 months it had really deteriorated at the spine and I was diagnosed with osteoporosis. In the last 12 months I have managed to reverse this and actually build stronger bones through a specialised weightlifting program. There are also medications such as Prolia that can help with this. I preferred the exercise program and think this has also helped to reduce my joint pain and stiffness.
The other major quality of life effect for me (from Femara) has been vaginal dryness. There is a good support group on here that can help with lots of practical advice on this side effect. I feel that I have found some things that work for me and while this side of life is not how it was, it is ok again now.
So, while Femara did have more side effects than Tamoxifen for me, I have found ways of improving these so that I really think my quality of life is very good. The main thing is to let your oncologist know the side effects you experience. Many times there are things that can help minimise the side effects. You don’t need to suffer in silence on here. Lots of support and sharing of ideas that have worked for others. Take care and I hope that radiotherapy goes ok. Let us know how you go. xxx