Awww @Sister sux huh?
Once you get past the "active" treatment a couple of years I think we go right down to the bottom of the pile of anyone giving a hoot haha and left to our own devices. 3 years on Tamoxifen and you know my story. I just wish someone had of said at the beginning this shit show how much it would really affect your life. Not just a little "you may have reduced Libido and hot flushes". I don't have debilitating aches anymore but the rest of it takes it's toll. It messes with your moods which in turn messes with your relationships etc etc Whether that would have stopped me taking it, I don't know.
I did read an article the other day (I'll try and find it) where they had said that a large percentage of those who got the whole works burger of treatment, especially if it induces menopause, where more likely to suffer a lot of side effects that say just surgery and HT. It also said that it ages you 10 to 15 years.
I went digging again as I am really concerned about my brain...or what's left of it. My short term memory is deteriorating to a worrying point. I get disorientated easily, have to really take notice of new places and am generally vague a lot of the time. I set alarms for pretty much everything. At least they are acknowledging now that it's not just a stint of "chemo brain" It's the whole cocktail.
So fuck it! I went off them for a longer stint this time. It's 6 weeks and I am only just starting to feel a slight improvement in the last couple of days. Not great like my breaks used to be just a miniscule bit clearer and no hot flushes for 3 weeks so that's been nice.
I had the dream that once I stopped the drugs things would improve but it's been too long I think so goodness knows how it's going to be after another 7 years. You can come and visit me in the loony bin :)
I try not to worry too much about it and just tell people I'm a ditz and laugh but it's really not all that funny to be honest.
So ho hum., off to see the onc again on Thursday and I am sure she's going to want me to change to letrozole but that's not gonna happen.
I feel for you lovely. xoxoxoxo
