When do you start 'counting' the years disease free?

Wouldn't thst be good! Unfortunately never....

As soon as the sucker was cut out!

Thanks Ladies, yes I am thinking after Herceptin which was Dec.  Fingers crossed to us all.  :) 

I would've said from surgery however as time has gone on and the side effects of treatment are making some days miserable I think my reset button for NED is probably still coming!

If there's not a hard and fast rule I shall start counting from the end of chemo. But if they find anything in the tissue after the mastectomy I shall start counting from then.

I started counting from 8 January 2018 - when I had the second surgery to take the breast and nodes.  The surgeon believes it's all gone and the rest is just mopping up in case.

Hi there I started counting after surgery as boob was fully removed and scans all clear and no lymph nodes involved. Margie x 

I counted from original diagnosis, but all the checkups counted from the end of treatment. I have just had my final radiation check up - 5 years on. IDC, wide excision, 9mm Her 2 +, EP+, 6 rounds TCH, Herceptin for the rest of the year, 30 rounds radiaiton, 5 years Arimidex.
All done, all finished !  I was hopeful at around 3 years I think - totally frightened to then.  My GP tells me when I get to 15 years with no recurrence I can truly count myself as safe. Roll on 2028 !!
Stay focussed, stay positive, live every minute of your life. 

Would love it if there were guarantees! But we can hope.