When do I go onto Hormone Therapy Tablets (Not that I want to)

I had PN in my toes. Five weeks ago I had a manual lymph drainage massage for a different issue and the PN pain in my feet reduced to barely there. Zumba is so much more fun now!

I’ve been taking Letrozole for over eight years and haven’t experienced drowsiness. I take it at night and as I suffer from insomnia, a bit of extra sleepiness wouldn’t go amiss! I’m a dedicated non-driver, so can’t advise on that.  If you are experiencing a loss of feeling though, it’s worth getting it checked. Tingling, or pins and needles, is usually the first sign of PN but if you do have PN and it’s causing difficulty in holding things, you do need to let your oncologist know and see if there is anything you can do to lessen the effects (I found the suggestion of vitamin B helped a bit). Best wishes. 

I started taking it at night as well. Always around 9pm. But it didn’t necessarily help me sleep more easily. I do feel tired the next day, but no problem with driving. I’m now on Exemestane, and apart from the carpal tunnel I get the same side effects 

Hi I have now started taking letrozeole tablets. One a day for 10 years. Goodness me.  The packet says  may cause drowsiness and not to drive. I decided to take these at night because I still want to be able to drive.   Has anyone had any issues with driving.  I feel I am Clumsier. Keep knocking over water glasses.  Could be pn because i can't always feel the whole glass.

Hi Locksley, I started my hormone tablets - Letrozole 3 weeks ago ( 8 weeks post chemo and 1 week before radiotherapy). My radiotherapy oncologist said she doesn’t normally start her patients on it until after all the treatment is finished but my chemo oncologist thought different. Don’t panic about not starting yet - enjoy the break as we will probably be taking them for 5/10/15 years ??

I love jigsaws. I will stay up until 3am to complete one and I am not a night owl.

Cool.  It was good.  Hubby does jigsaw puzzles .... he is doing one right now!

take care xx

@Garnet7 I am so glad you are going okay on Arimidex. I come from an arthritis background so had the aches and pains before my diagnosis no matter which tablet i was on!  AIs just made them worse!  Grr  Let me know if you ever visit again!  We can meet up for a natter! Xx. I love my back yard. I love kayak fishing too so do that as often as I can!! I also run the local uke group so that helps keep me busy as well and they are great support for me when going through tough times. It is SO important to keep busy, doing what you love!!  Being idle mucks with the brain! 

When you are ready, Jump onto  to the webcast on fear of recurrence ... it is really good. I’ve just watched it now. 
Take care xx

Absolutely, I hear you, @Garnet7 .... it isn’t their ‘area’ so they really should keep their mouths shut!

My surgeon said I would be on Tamoxifen.... but my Onc said Letrozole and I only lasted 6 weeks!  Then 6 months on Exemestane... and now ‘happily’ (or as happy as you can be!) on Arimidex for 2.5years now.  So don’t be afraid to try a different tablet if this one doesn’t suit you.

I am also taking some magic oil (started it when I went onto the Arimidex) and I am sure it is taking the edge off my aches and pains.  

All the best xx

I started mine as soon as I finished chemo and before I started radiation but your oncologist should let you know.  Please don't stress about going on them.  Yes, you will have read here how many of us have side effects but that does not mean that you will.