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louiseg's avatar
louiseg
Member
16 years ago

Tamoxifen side effects?

Hi Everyone

I have read in a few people' s posts that they suffer from some side effects from taking Tamoxifen.  I am 42 years old and after I have my chemo I will be put onto Tamoxifen for 5 years.  What sort of problems do you have and what have you done to ease these problems?

I don't know much about cancer treatment so I am unsure whether there are alternatives or what sort of questions I should be asking my oncologist....I see her again on 27th October when I start Chemo.

Any info would be appreciated!

Thanks,

Louise

ps I have read the info in the My Journey Kit but it is very general and if possible I would love to hear some personal experiences if you are willing to share :)

tamoxifen

109 Replies

  • Deeay's avatar
    Deeay
    Member
    11 years ago

    Hi Annie,

    I had this too! Its gone now but drove me crazy. My Doctor couldn't work it out and Oncologist said probably caused by chemo. I even went to the Dentist and had all my silver fillings replaced with tooth coloured amalgam ones. I finally just forgot about it and accepted it. Mine was more in the saliva or back of my throat. Its gone now anyway and I'm 3.5 yrs post Chemo. Probably went last year. Can't remember. So hang in there!!

    Just an aside - can you change Tamoxifen brands? I've tried a few generic ones over the years and some seem less offensive. Maybe that would help?

    Also have you had a good check to see that you are still cancer free? Just a thought..... 

    All the best, Diane