Hi Donna and Sue, thanks for your positive posts, and thank you for understanding that I am not telling anyone what to do, except to get the facts about their personal risk levels, and to discuss these things with their own team of medical advisors. And to really think about the choices they make. Things that both of you and many others have done anyway.
I do not take Tamoxifen, because I am ER- so my surgeon said it is no use to me. Being ER- is a mixed blessing because ER+ would meant I had less chance of recurrence, so long as I took Tamoxifen. But my cancer is what it is.
And it is tough being in this club, all of us having to make tough choices, some of which we may regret later (like for me neoadjuvant chemo was a choice offered, but which my surgeon said would not change anything (except the size of tumor they would be removing) and would not reduce my chances of recurrence, but later I heard how it can shrink the tumor to nothing before surgery, which sounds like a good choice).
As you say Sue, all of us with breast cancer currently have to live with a frightening increase in our chance of dying younger than we want. There are no guarantees. The facts are hard to take but without them we are in the dark. For myself, I think the biggest struggle is to face the facts so I can manage my treatment/ongoing healthcare wisely but put them aside enought to still live well and to the full.
Jessica.