Nerlynx

Thank you for your reply. I did speak to my oncologist about the diarrhea and he said his patients were finding it manageable with the anti diarrhea medication they recommended with it for the first couple of months. Some did not even need it....so it seems everyone is different and it affects people in different ways. I am definitely going to give it a good go.  I have just heard that if my oncologist had applied before the cut off date we would still have been covered under compassionate grounds to have this free of charge so feeling a little let down at the moment. I guess I should be thankful that the company are subsiding it but $18,000 is still a hell of a lot of money. Looks like back to work for me.  Hopefully by the time you finish your Hercepton the PBS have approved it for funding.