Mrs Carol W

Rennay, I am so pleased to hear that you are doing well 8 years later. It was just what I needed to hear. Thanks :)

Just caught up with this thread after a long absence. Pleased to report I am well and enjoying life.

It will be 8 years since my diagnosis ... time flies ... and all's well!

Rennay

Hi all,

I have had 9 Herceptin treatments and so far so good and hoping it stays that way. Though do have some aches and joint pain. Thank God for the drug Herceptin and for the push by the BCNA to get it on the PBA because without it our outlook would not be good. Most of the time I am positive but sometimes the negative thoughts creep in. A cancer diagnosis changes your life forever. 

My blood pressure has settled down again! I have found that different issues arise and then sort of resolve themselves whilst on Herceptin - I guess that that's how I know it is at work in my body. I am just so gratelful we have this great drug to help  us live longer and stronger.

My hypertension got far worse but it was put down to being one of several side effects of being on Arimidex. It has taken me years to be taken off my previous drug. Now I am on Atacand and blood pressure & also lymphoedema have improved markedly.

Hope this helps, 

I'd be interested to know what the oncologist & others think

Carol

My hypertension got far worse but it was put down to being one of several side effects of being on Arimidex. It has taken me years to be taken off my previous drug. Now I am on Atacand and blood pressure & also lymphoedema have improved markedly.

Hope this helps, 

I'd be interested to know what the oncologist & others think

Carol

Yes to the joint and muscle pain. It varies in intensity but is alwayspresent. It is very tiring and takes a lot of positive self-talk, plus heat bags, warm baths, Panadol, exercise every day (walking and swimming) and just plain perserverance to deal with.

I also have some loss of feeling and numbness in my right big toe as well.

Hello. This is my first time on this site. I am so encouraged to continue on with my treatment after completing chemotherapy and starting Herceptin. Has anyone had a problem with steadily increasing blood pressure whilst on Herceptin?

I am already being treated with chronic hypertension and it has been very well manged for 15 years. Now I have had 5 herceptin treatments and my BP is steadily rising after each treatment ( I am required to monitor it daily). It is very worrying and I wonder what anyone else's experience has been. I am due to see my oncologist next week.

I found Herceptin was far nicer than the chemo drugs and their side effects or the side effects of Arimidex. It just was a pain going in for an infusion every third week and having some swelling for a week - again nowhere near as bad as with chemo. 

I now have lymphoedema which is an expensive chronic condition requiring constant vigilence tp prevent further tick & mozzie bites or nicks, burns etc which result in further swelling then massage, creams & bandaging and for me a month of intensive treatment with complex manual therapy.

Thanks Rennay!