Forum Discussion

Carol's avatar
Carol
Member
15 years ago

Mrs Carol W

I'd be interested to hear how many of you got Herceptin for early stage BC either before or after it came on the PBS about October 06. I was one of my oncologists first PBS patients.

Carol

33 Replies

  • Hi Carol

    I started on Herceptin in January this year and am 12 treatments in 5 to go. I am having a lot of trouble with joint and muscle pain and was interested to know if anyone else has this issues. I still have loss of feeling in my toes and balls of my feet but I am putting this down to the Taxotere.

    I am hoping that the aches and pains might reduce when the Herceptin is finished. No problems with the heart so far. My kids think I don't have one anyway so thats no surprise.

    Any info would help

    Kay

  • Hi Carol

    I started on Herceptin in January this year and am 12 treatments in 5 to go. I am having a lot of trouble with joint and muscle pain and was interested to know if anyone else has this issues. I still have loss of feeling in my toes and balls of my feet but I am putting this down to the Taxotere.

    I am hoping that the aches and pains might reduce when the Herceptin is finished. No problems with the heart so far. My kids think I don't have one anyway so thats no surprise.

    Any info would help

    Kay

  • Hi Carol,

    I was one of the first to go on Herceptin after it went on the PBS.

    My experience wasn't good. My heart function plummetted and I was taken off the treatment after 11 sessions. I should have had 18 all up but it wasn't to be.

    My heart is still in trouble and I am now under a heart specialist.

    You can't win sometimes  can you! LOL

     

    Did you have any problems?

     

    Rennay