Carol
15 years agoMember
Mrs Carol W
I'd be interested to hear how many of you got Herceptin for early stage BC either before or after it came on the PBS about October 06. I was one of my oncologists first PBS patients.
Carol
I'd be interested to hear how many of you got Herceptin for early stage BC either before or after it came on the PBS about October 06. I was one of my oncologists first PBS patients.
Carol
Hi Dribbler 12,
First you have to keep going for those who love you ... when you're tired and feeling dispirited this is really hard ... just keep your eyes on the prize ... and soon you will be living life for yourself as well as for those you love and the journey becomes easier.
I still get a lump in my throat when I read about others starting the journey and I wish I could help them all. My advice is to remember everything passes and before you know it it will be in the past. Never truly forgotten but definitely in the past.
I wish you strength , stamina and the belief that it is do-able ...we're women after all ... we can do anything and everything.
xxx Rennay
Hi Dribbler 12,
First you have to keep going for those who love you ... when you're tired and feeling dispirited this is really hard ... just keep your eyes on the prize ... and soon you will be living life for yourself as well as for those you love and the journey becomes easier.
I still get a lump in my throat when I read about others starting the journey and I wish I could help them all. My advice is to remember everything passes and before you know it it will be in the past. Never truly forgotten but definitely in the past.
I wish you strength , stamina and the belief that it is do-able ...we're women after all ... we can do anything and everything.
xxx Rennay
Rennay, I am so pleased to hear that you are doing well 8 years later. It was just what I needed to hear. Thanks :)
Just caught up with this thread after a long absence. Pleased to report I am well and enjoying life.
It will be 8 years since my diagnosis ... time flies ... and all's well!
Rennay
Hi all,
I have had 9 Herceptin treatments and so far so good and hoping it stays that way. Though do have some aches and joint pain. Thank God for the drug Herceptin and for the push by the BCNA to get it on the PBA because without it our outlook would not be good. Most of the time I am positive but sometimes the negative thoughts creep in. A cancer diagnosis changes your life forever.
My blood pressure has settled down again! I have found that different issues arise and then sort of resolve themselves whilst on Herceptin - I guess that that's how I know it is at work in my body. I am just so gratelful we have this great drug to help us live longer and stronger.
My hypertension got far worse but it was put down to being one of several side effects of being on Arimidex. It has taken me years to be taken off my previous drug. Now I am on Atacand and blood pressure & also lymphoedema have improved markedly.
Hope this helps,
I'd be interested to know what the oncologist & others think
Carol
My hypertension got far worse but it was put down to being one of several side effects of being on Arimidex. It has taken me years to be taken off my previous drug. Now I am on Atacand and blood pressure & also lymphoedema have improved markedly.
Hope this helps,
I'd be interested to know what the oncologist & others think
Carol
Yes to the joint and muscle pain. It varies in intensity but is alwayspresent. It is very tiring and takes a lot of positive self-talk, plus heat bags, warm baths, Panadol, exercise every day (walking and swimming) and just plain perserverance to deal with.
I also have some loss of feeling and numbness in my right big toe as well.
Hello. This is my first time on this site. I am so encouraged to continue on with my treatment after completing chemotherapy and starting Herceptin. Has anyone had a problem with steadily increasing blood pressure whilst on Herceptin?
I am already being treated with chronic hypertension and it has been very well manged for 15 years. Now I have had 5 herceptin treatments and my BP is steadily rising after each treatment ( I am required to monitor it daily). It is very worrying and I wonder what anyone else's experience has been. I am due to see my oncologist next week.