The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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research needed into side-effects of chemo and hormone therapy","id":"message:135517","revisionNum":1,"repliesCount":66,"author":{"__ref":"User:user:20554"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:hormone-blocking-therapy"},"conversation":{"__ref":"Conversation:conversation:135517"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:135517"},"body@stripHtml({\"truncateLength\":200})":" In our BCNA network, many members report unexpected, painful and\nongoing side-effects during and after chemotherapy and hormone therapy; for\nexample in a recent discussion on ‘hormone therapy and ten...","body@stringLength":"1965","rawBody":"
In our BCNA network, many members report unexpected, painful and\nongoing side-effects during and after chemotherapy and hormone therapy; for\nexample in a recent discussion on ‘hormone therapy and tendon issues’. Sometimes\ntreating medical staff seem to be unsure\nabout causes and best treatment for side-effects.
I read a study 'Incidence and severity of self-reported chemotherapy side-effects in routine care' (https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0184360#sec013 ) This study reports that knowledge about side-effects comes largely from clinical trials. There is little evidence coming from normal clinical care.
\n\n
\n\n
In this study 449 people with breast, lung or bowel cancer were\ninterviewed and asked questions about their side-effects. The study found that “3/4 of individuals\nundergoing chemotherapy in NSW will experience multiple side-effects during\ntheir treatment, and for over 60% this will include a serious side-effect.” The\nstudy found that side-effects were similar across the three cancer types.
\n\n
The authors suggest that “this information is useful for both clinicians\nand policy makers, who typically make treatment and funding decisions for\nstandard practice, but often on the basis of potentially unrealistic clinical\ntrials. This work also confirms the need for side effects to be collected using\npatient-reported methods, to be monitored throughout chemotherapy treatment,\nand highlights the importance of observational data in providing information\nfor decision-makers that is relevant to the clinical practice setting.”
Have\na look at this study; it is very interesting and readable, and brings up lots\nof questions and ideas. Although this study is about chemo side-effects, and does not include\nhormone therapy side-effects; I am thinking that a similar study is needed to measure\nhormone therapy side-effects in the real world.
In our BCNA network, many members report unexpected, painful and\nongoing side-effects during and after chemotherapy and hormone therapy; for\nexample in a recent discussion on ‘hormone therapy and tendon issues’. Sometimes\ntreating medical staff seem to be unsure\nabout causes and best treatment for side-effects.
I read a study 'Incidence and severity of self-reported chemotherapy side-effects in routine care' (https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0184360#sec013 ) This study reports that knowledge about side-effects comes largely from clinical trials. There is little evidence coming from normal clinical care.
\n\n
\n\n
In this study 449 people with breast, lung or bowel cancer were\ninterviewed and asked questions about their side-effects. The study found that “3/4 of individuals\nundergoing chemotherapy in NSW will experience multiple side-effects during\ntheir treatment, and for over 60% this will include a serious side-effect.” The\nstudy found that side-effects were similar across the three cancer types.
\n\n
The authors suggest that “this information is useful for both clinicians\nand policy makers, who typically make treatment and funding decisions for\nstandard practice, but often on the basis of potentially unrealistic clinical\ntrials. This work also confirms the need for side effects to be collected using\npatient-reported methods, to be monitored throughout chemotherapy treatment,\nand highlights the importance of observational data in providing information\nfor decision-makers that is relevant to the clinical practice setting.”
Have\na look at this study; it is very interesting and readable, and brings up lots\nof questions and ideas. Although this study is about chemo side-effects, and does not include\nhormone therapy side-effects; I am thinking that a similar study is needed to measure\nhormone therapy side-effects in the real world.
"},"Conversation:conversation:135517":{"__typename":"Conversation","id":"conversation:135517","solved":false,"topic":{"__ref":"ForumTopicMessage:message:135517"},"lastPostingActivityTime":"2019-12-04T03:37:07.000-08:00","lastPostTime":"2019-12-04T03:37:07.000-08:00","unreadReplyCount":66,"isSubscribed":false},"ModerationData:moderation_data:135517":{"__typename":"ModerationData","id":"moderation_data:135517","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:135517_1":{"__typename":"Revision","id":"revision:135517_1","lastEditTime":"2019-05-12T15:33:16.000-07:00"},"ForumReplyMessage:message:135571":{"__typename":"ForumReplyMessage","id":"message:135571","conversation":{"__ref":"Conversation:conversation:135517"},"author":{"__ref":"User:user:20667"},"revisionNum":1,"uid":135571,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:hormone-blocking-therapy"},"subject":"Re: More research needed into side-effects of chemo and hormone therapy","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:135571"},"parent":{"__ref":"ForumTopicMessage:message:135517"},"body":"You have Plenty of ammunition in this thread alone, @kmakm to 'load your guns' for the questions tonight. Good Luck. Try & cover as many as you can - but specifically the aches & pains that continuously plagues us. And the worrying thing is - that once we STOP the medication, how do we know we will go back to 'pre treatment status'! I am very afraid that I will be stuck with what I have, forever - even after going off the tabs eventually!! I hope it goes - but I fear not.
I think I can say for everyone - that NONE of us expected to get 24/7 sick as a result of our medications once the active treatment had finished.
One of the main beefs that is repeated over & over re the side effects - is the inflammation that has occurred in many of our joints. It affects us 24/7 - ie it is CHRONIC. It affects our daily activities (unable to do them) as well as our sleeping hours (just can't!)
This chart shows exactly how inflammation affects other parts of the body, irrelevant of where the actual 'pain' is. Continued inflammation puts stress on every other part of the body! It can also mask other 'symptoms', or create new ones. Yet continual taking of anti inflammatories is also bad for the body and can lead to other major malfunctions in the body, including the need for 'uppies & downies'.
","body@stringLength":"1848","rawBody":"You have Plenty of ammunition in this thread alone, @kmakm to 'load your guns' for the questions tonight. Good Luck. Try & cover as many as you can - but specifically the aches & pains that continuously plagues us. And the worrying thing is - that once we STOP the medication, how do we know we will go back to 'pre treatment status'! I am very afraid that I will be stuck with what I have, forever - even after going off the tabs eventually!! I hope it goes - but I fear not.
I think I can say for everyone - that NONE of us expected to get 24/7 sick as a result of our medications once the active treatment had finished.
One of the main beefs that is repeated over & over re the side effects - is the inflammation that has occurred in many of our joints. It affects us 24/7 - ie it is CHRONIC. It affects our daily activities (unable to do them) as well as our sleeping hours (just can't!)
This chart shows exactly how inflammation affects other parts of the body, irrelevant of where the actual 'pain' is. Continued inflammation puts stress on every other part of the body! It can also mask other 'symptoms', or create new ones. Yet continual taking of anti inflammatories is also bad for the body and can lead to other major malfunctions in the body, including the need for 'uppies & downies'.
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