More research needed into side-effects of chemo and hormone therapy

I've asked my onc what he does with the information I give him. Does it go into some sort of database? No. He's a good doctor and I like him, but I find this unacceptable. 
Given the money involved in the provision of these drugs, only the naive would believe total disclosure of all side effects would be generally available. If the people on the trial didn't report side effects as being debilitating, it isn't a 'thing'. For that to happen, 'debilitating' has to be an option on a survey. 
I'm getting grumpier and more cynical every day.