Thanks @arpie - I appreciate you starting this conversation.
I'm in month 3 of Letrozole and gosh, I wish I was one of the 'no side effects' people.
It's hard. I don't know whether I'm adapting to it, whether my 'discomfort' threshold is increasing, or whether the side are receding, but trying to imagine this as the new normal for the next 5, 7, 10 years ... well, it is overwhelming.
My last med onc conversation was 'you should be feeling ...' and they lost me right there.
Should?
What about what I am feeling? I very much know the difference between discomfort and pain.
'Oh, maybe you're not exercising enough? Is it motivation that's stopping you going?'
So 2 gym sessions per week (with a program honed by an exercise physio to help my bones given medication bone density loss likelihood in the future) and swimming 1km twice per week isn't enough?
And no, my motivation is fine, it's joint pain and fatigue that convinces me to rest and not soldier on.
It will be very interesting to see going forward if there are any trials alternate protocols for AI's.
Absolute best wishes to you when you're off them altogether
Kx
