The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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I have had endomet...","body@stringLength":"1885","rawBody":"I know this subject has probably been done over and over but I am interested in finding out if anyone has had success with controlling severe pain caused by aromatase inhibitors.
I have had endometrial cancer and breast cancer. Both primary cancers. Both hormonally driven. As a result I need to stay on HIs possibly for the rest of my life. I'm 54. This journey started when I was 49.
I did 14 months on Letrozole and 11 of them were pure hell. The pain I felt was unrelenting. It started in my hands but quickly moved to hips, knees, ankles, feet. Standing was horrible. Walking any distance impossible. I tried:
Exercise - aqua aerobics and swimming Tumeric Duloxitine Magnesium Ibuprofen Celebrex
My oncologist changed me to Exemestane and I have been on that since February this year after a 4 week break. It is much better but I still have pain when I stand and walk and have developed issues with my Achilles tendon which is very painful. I have dropped the Duloxitine and Tumeric (the pain didn't get worse because of this), still take 100mg of Celebrex morning and night. Use Voltaren emugel and Magnesium (soluble) at night. I take Vitamin D.
I have been going to a specialised gym that works with cancer patients and that has also helped but currently I am not going because of the Achilles problem. I have seen a rheumatologist, a physiotherapist, exercise physiologist.
I really would like to find a pain medication that actually takes the pain away when I walk so I could walk and get back to the gym a some semblance of normality.
I have recently also stopped working, partly because of these issues.
So, any suggestions/ideas I can talk through with y medical team.","kudosSumWeight":0,"postTime":"2019-10-16T02:38:34.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:aromatase-inhibitors","text":"aromatase-inhibitors","time":"2025-03-25T05:02:51.581-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:joint-pain","text":"joint-pain","time":"2025-03-25T05:02:16.075-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:pain","text":"pain","time":"2024-10-28T21:23:48.297-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:200867_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1407},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"I know this subject has probably been done over and over but I am interested in finding out if anyone has had success with controlling severe pain caused by aromatase inhibitors.
I have had endometrial cancer and breast cancer. Both primary cancers. Both hormonally driven. As a result I need to stay on HIs possibly for the rest of my life. I'm 54. This journey started when I was 49.
I did 14 months on Letrozole and 11 of them were pure hell. The pain I felt was unrelenting. It started in my hands but quickly moved to hips, knees, ankles, feet. Standing was horrible. Walking any distance impossible. I tried:
Exercise - aqua aerobics and swimming Tumeric Duloxitine Magnesium Ibuprofen Celebrex
My oncologist changed me to Exemestane and I have been on that since February this year after a 4 week break. It is much better but I still have pain when I stand and walk and have developed issues with my Achilles tendon which is very painful. I have dropped the Duloxitine and Tumeric (the pain didn't get worse because of this), still take 100mg of Celebrex morning and night. Use Voltaren emugel and Magnesium (soluble) at night. I take Vitamin D.
I have been going to a specialised gym that works with cancer patients and that has also helped but currently I am not going because of the Achilles problem. I have seen a rheumatologist, a physiotherapist, exercise physiologist.
I really would like to find a pain medication that actually takes the pain away when I walk so I could walk and get back to the gym a some semblance of normality.
I have recently also stopped working, partly because of these issues.
So, any suggestions/ideas I can talk through with y medical team.","customFields":[]},"Conversation:conversation:200867":{"__typename":"Conversation","id":"conversation:200867","solved":false,"topic":{"__ref":"ForumTopicMessage:message:200867"},"lastPostingActivityTime":"2019-10-21T02:24:37.000-07:00","lastPostTime":"2019-10-21T02:24:37.000-07:00","unreadReplyCount":24,"isSubscribed":false},"ModerationData:moderation_data:200867":{"__typename":"ModerationData","id":"moderation_data:200867","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:200867_1":{"__typename":"Revision","id":"revision:200867_1","lastEditTime":"2019-10-16T02:38:34.000-07:00"},"ForumReplyMessage:message:200888":{"__typename":"ForumReplyMessage","id":"message:200888","conversation":{"__ref":"Conversation:conversation:200867"},"author":{"__ref":"User:user:20569"},"revisionNum":1,"uid":200888,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:hormone-blocking-therapy"},"subject":"Re: Exemestane and Joint/Muscle/Tendon Pain","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:200888"},"parent":{"__ref":"ForumTopicMessage:message:200867"},"body":"I had 1 x 25mg per day for 7 days. I do understand the dangers of taking it for a lengthier period of time but I have been perplexed by the dismissal of it as beneficial. Surely, the medical profession at large must be aware that it works wonders for a portion of the population in these circumstances so it must be that they think we are so stupid or irresponsible that we are not able to recognise that it is not something that can be taken long term. But just to get relief for a short time is wonderful.","body@stringLength":"525","rawBody":"I had 1 x 25mg per day for 7 days. I do understand the dangers of taking it for a lengthier period of time but I have been perplexed by the dismissal of it as beneficial. Surely, the medical profession at large must be aware that it works wonders for a portion of the population in these circumstances so it must be that they think we are so stupid or irresponsible that we are not able to recognise that it is not something that can be taken long term. But just to get relief for a short time is wonderful.","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-10-18T21:23:40.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:200888_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":5},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[]},"CachedAsset:theme:customTheme1-1744733916442":{"__typename":"CachedAsset","id":"theme:customTheme1-1744733916442","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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I've had two different types of breast cancer, but one side was HER2Positive so since January this ...","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":1,"repliesCount":5,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:hormone-therapy","text":"hormone-therapy","time":"2025-03-25T05:02:12.222-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:research","text":"research","time":"2025-03-25T05:02:00.635-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:tamoxifen","text":"tamoxifen","time":"2025-03-25T05:01:51.381-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:treatment","text":"treatment","time":"2025-03-25T05:02:03.081-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:137206":{"__typename":"Conversation","id":"conversation:137206","topic":{"__typename":"ForumTopicMessage","uid":137206},"lastPostingActivityTime":"2025-02-14T17:34:50.000-08:00","solved":false},"User:user:21752":{"__typename":"User","uid":21752,"login":"youngdogmum","registrationData":{"__typename":"RegistrationData","status":null},"deleted":false,"id":"user:21752"},"ForumTopicMessage:message:137206":{"__typename":"ForumTopicMessage","subject":"Duration of endocrine therapy in premenopausal Australian patients","conversation":{"__ref":"Conversation:conversation:137206"},"id":"message:137206","revisionNum":1,"uid":137206,"depth":0,"board":{"__ref":"Forum:board:hormone-blocking-therapy"},"author":{"__ref":"User:user:21752"},"metrics":{"__typename":"MessageMetrics","views":182},"postTime":"2025-01-07T16:08:43.000-08:00","lastPublishTime":"2025-01-07T16:08:43.000-08:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"Hello all Very long time since I’ve poked my head into this discussion forum. 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