Forum Discussion
youngdogmum
1 year agoMember
Duration of endocrine therapy in premenopausal Australian patients
Hello all Very long time since I’ve poked my head into this discussion forum. I’d like to hear what other younger pre-menopausal patients around the country are being recommend regarding duratio...
Esjay
1 year agoMember
Hello @ youngdogmum, this is an interesting question.
I don't really think there is a 'one size fits all unfortunately.'
My age @ diagnosis 41 yrs Jan '23
Stage 2 IDC & DCIS
HR+, HER2-
After 3 initial surgeries including mastectomy & implant reconstruction I was put on 5 years 20mg tamoxifen.
Due to severe side effects ie shut my brain down, I ceased treatment but had a dcis recurrence.
After 2 more surgeries,back on Tamoxifen 10 mg. It caused stage 4 endometriosis and extensive hemoragging & fibroids. Resulting in a hysterectomy & ceased tamoxifen.
Another recurrence 4 months later...this time 6 tumours on chest wall of non invasive papillary carcinoma.
After 2 more surgeries and radiotherapy..
Back on 5mg Tamoxifen until further notice...Time will tell what's next!