Hi there,
I was peri-menopausal when I was diagnosed. My onc has said that although 5 years is standard at present, studies will come through within the next 5 years that make it more likely that I'll be on the AI's for at least 7, but more likely 10 years.
For the ovarian suppression, I was surprised that I would need to be on this for more than 2 - 3 years, given i was near to (but not quite) menopausal, hence my understanding that at least 3-5 years for the Zoladex, and that could be extended. I'm not sure what tests would need to happen for this to cease.
I can choose an oophorectomy at any stage to cease the monthly injections, but I'm not keen for another procedure just yet.
Have you discussed Ribociclib with your onc too?
i'm also on Zometa (as 6 monthly infusions) and I"m not sure how long that will go on for - i assume as long as the AI's do.
K
Interesting, there are a couple of studies already that show a small group benefit from 7 years but very few do benefit from 10 years of AI.
I struggle internally with the decision to continue on these or switch to tamoxifen…
I’ve long missed the boat for ribo, I believe it’s only approved for the first two years of endocrine therapy (it was still a trial when I was diagnosed and I chose to not enrol) .
I am still child bearing age/haven’t had children yet (I am now 33, was 27) and tbh I am not keen on further treatment if I can avoid it. I did 2 years of Zometa infusions but have stopped, as a new study showed 2 were just as beneficial as 3 and my bone density has stayed fine so far, it’s declined but is still normal.
I pay for an annual BMD to check.
