Forum Discussion

Newwingstoo's avatar
3 months ago

Costs

I am not sure which hormone therapy I will need yet but is it all the same costs if you’ve started being prescribed through private or public? 

3 Replies

  • So sorry to see you here, Newwingstoo​  ... 

    I went Private for surgery, just to 'get it done' asap ... but I went Public for all my Radiation & and Hormone Therapy treatments & only paid for the prescription costs (as a pensioner, at the reduced rate.)

    So my question would be ... what age are you and/or are you eligible for a Concession Card? This card should reduce costs for your Meds, if you are eligible.

    It's great that you've found us - as you've found the right spot here for support & info from those who've 'been there, done that'! So hopefully we'll be able to smooth the way for your own story.  Whack up ANY question - remember there are NO dumb questions!!!  Make sure you take a trusted friend or family member with you to your appointments, as a 'backup set of ears', as it is difficult remembering everything that is said.  Also, consider recording your sessions on your phone, so you can go over it again later, for the same reason. 😉

    Mine was ILC (Invasive Lobular Cancer) - I was lucky to only have the one lumpectomy, rads & tablets .... and have recently finished with the tabs now!

    As you progress thru your appointments/surgeries ... let us know how you are going, by continuing to reply to this post ... it is a good way of 'keeping a diary' of everything you're going thru, in the one spot!!  I look back on my original post too (up til I started the hormone suppression) and am amazed at the wonderful support afforded to me, too xx

    This diagnosis can really muck with your brain too - so if you feel sad, angry, distressed - that is absolutely 100% NORMAL!  But you don't have to 'do it' on your own!  .... ask your GP (or your treating team) for a referral to see a counsellor .... or listen to Charlotte Tottman's podcast (link below).  You can also ring our Helpline on 1800 500 258 for a confidential one-on-one chat xx   

    Try not to get ‘ahead of yourself’ with the ‘what ifs’ ….. as they may never happen - and going down that rabbit hole (specially if using Dr Google) which will REALLY muck with your brain  :(  A lot of info on Google doesn’t relate to your diagnosis or is out of date - so put any questions you have, to your medical team (or here!) xx   Take it one day at a time, one hour, if needed ..... but keep trying to do 'stuff you love' too .... so you have good 'down time' as well!  I treated myself to a holiday on Norfolk Island after all my active treatment ..... as a 'Well Done YOU' for going thru all that stuff - as a reward!!!

    Charlotte Tottman  is a BC specialist counsellor who was diagnosed herself, also had a double mastectomy, so knows EXACTLY what we've all been thru, both emotionally and physically!  Her reaction to her own diagnosis was also quite different to what she 'thought' it might be, given that she'd been counseling women's reactions for some years before, so thought she 'new' what to expect!  She is VERY easy to listen to, too xx
    http://www.drcharlottetottman.com.au/my-podcast.html

    Raelene Boyle's video is also well worth watching! 
    https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/

    There is HEAPS of info in the link below to help you navigate the blog and also some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.

    https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737

    Take care & all the best for your surgery & ongoing treatment xx

  • Hi Newwingstoo​ :) While we wait for others to advise on their experience with this, I thought it might be helpful to share some relevant information and resources from BCNA.

    The actual medication cost should be the same whether you go through public or private. However, depending on your individual circumstance, there can be additional in-person appointments required so that could be more expensive if you go through the private system. 

    🔗 Article: The financial cost of breast cancer

    🔗 Article: Choosing public or private health systems for treatment

    🔗 Webcast: Managing the cost of breast cancer

    Hope this helps! Please call the helpline if you need to chat on 1800 500 256.