cannot tolerate tamoxafen
Hi Ladies
I am seeking the opinions of others who have not tolerated tamoxafen....
I started tamox after radio last year in April and managed almost 6 months but chose to stop taking it Oct 2014 and felt immensely better within couple of days and enjoyed feeling back to my usual self - first time since surgery in Oct 2013 (followed by chemo and radio). My dr was happy for me to take the break from it and suggested trialing it again on half dose. I trialed again late last year and same again hated it so stopped and had not taken tamox since dec 2014.
Again at the advice of my dr I have just started again on 10mg and once again feeling the same and think I will stop it....for good.
My symptoms seem possibly less typical that what I hear/read about others with tamox - it's not the hot flushes, these are minimal if any. But it is the feeling in my head of complete vagueness, almost like I'm about to come down with the flu, or jet lag that you just cant get rid of, tiredness and increasing anxiety.
I am 42, a mum to 3 daughters, youngest who is 9 and twins 16 and I just find i cant function as a mum (or wife!). Whilst I can cope with the tamox far better than I did last year I just feel so terrible in my head and I hate feeling like this!
My statistical benefits of tamox are very small and my dr has said that it was good I had the chemo ( as I was borderline to decide it at the time after surg - no lymph nodes detected) if i cant keep on tamox then that quality of life is a better benefit to me.
Do any other ladies have any comments to help me with this decision - I would love to know if any of you experienced these head symptoms.??
Thanks!