Hi @LorraineS I have done this specifically in Feb 2017, I came off Arimidex and recorded it for 6 weeks. I had improvements within 2 weeks. I didn't have increased pain at all though, it only got better. I was then placed onto Aromasin, which I was told is pretty much the same but everyone reacts differently. To be honest? there's no difference on this, however Aromasin is a steroid based med and Ive had enough especially the weight gain is horrendous no matter what you do, Aromasin affects the LPL cells, which means it stores fat. uuugh!! so Ive been on AI's for 8 years now Tamoxifen to start but had a recurrence at 4yrs, so had to have chemo and then Arimidex. I am now going to request Letrozole for my last 2 years or come off altogether.
The constant pain is very difficult absolutely! I use panadol osteo on a bad day and it takes the edge off. I did find that for me the pain is a combination of an unnatural menopause, chemo induced, chemo and the AI. All of these combined cause the effects or exacerbate the AI.
Tamoxifen is very different and if you are pre menopausal which I was I had zero side effects on that, it just doesnt work in 1/3 of cases.
All the best hope you find a solution, unusual for the pain to increase so I'd investigate that! xx M