Forum Discussion
arpie
7 years agoMember
Hi @Jennikens - welcome to the forum - this the best place to ask questions & get support from those who've been thru what you have! I am fairly new to all this - having been detected this time last year & diagnosed & surgery in Jan this year followed by Rads. I am currently on Exemestane/Aromasin as I had severe side effects with Letrozole/Femara! But not everyone has the extreme side effects!
BIG Congratulations on taking your AI for 10 years already - that is an awesome milestone!! I have 3 friends my age (65 plus) who's Mothers have had BC 30 years ago - back then, I think Tamoxifen was the only choice of Hormone Blocker. Most of them were on it for 10 years straight up - and none of them have had a recurrence. Mind you, they'd also had BIG CHEMO as well - cos back then, it was BANG IT ON THE HEAD - not so much streamlined as it is to individuals these days.
I think it's only been in the last 10-15 years that they started cutting the active treatment back to a suggested 5 years - and I would not be surprised if many continue on to the 10 year mark as well!
So even MORE, well done you - on reaching the 10 year mark!! And how fantastic is it that you are managing your side effects so well - tell us your secrets. ;)
I think you've possibly already made your decision in a way (to stay on it) - cos I reckon if I get to 10 years on MY tabs and haven't had a recurrence - I reckon I'd just keep going too!! ;)
Yes, they are a security blanket .... and as your surgeon is suggesting you CAN stay on it - I reckon I'd be following his advice!! Have you chatted to your Oncologist as well, just to be sure, to be sure? I am sure he wouldn't have you continuing on it if they were bad for you! I think mentally - staying on would be the way to go, rather than worrying about recurrence, if you went off them
I am sure some other lovelies who further down the track then me, will be only too happy to add their two bits shortly .....
Feel free to share you story with us! Where abouts do you live (roughly) - we may have fellow members nearby!!
Take care & all the best with your ongoing treatment xxx
BIG Congratulations on taking your AI for 10 years already - that is an awesome milestone!! I have 3 friends my age (65 plus) who's Mothers have had BC 30 years ago - back then, I think Tamoxifen was the only choice of Hormone Blocker. Most of them were on it for 10 years straight up - and none of them have had a recurrence. Mind you, they'd also had BIG CHEMO as well - cos back then, it was BANG IT ON THE HEAD - not so much streamlined as it is to individuals these days.
I think it's only been in the last 10-15 years that they started cutting the active treatment back to a suggested 5 years - and I would not be surprised if many continue on to the 10 year mark as well!
So even MORE, well done you - on reaching the 10 year mark!! And how fantastic is it that you are managing your side effects so well - tell us your secrets. ;)
I think you've possibly already made your decision in a way (to stay on it) - cos I reckon if I get to 10 years on MY tabs and haven't had a recurrence - I reckon I'd just keep going too!! ;)
Yes, they are a security blanket .... and as your surgeon is suggesting you CAN stay on it - I reckon I'd be following his advice!! Have you chatted to your Oncologist as well, just to be sure, to be sure? I am sure he wouldn't have you continuing on it if they were bad for you! I think mentally - staying on would be the way to go, rather than worrying about recurrence, if you went off them
I am sure some other lovelies who further down the track then me, will be only too happy to add their two bits shortly .....
Feel free to share you story with us! Where abouts do you live (roughly) - we may have fellow members nearby!!
Take care & all the best with your ongoing treatment xxx