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kezmusc's avatar
kezmusc
Member
8 years ago

Anyone losing weight on Tamoxifen?

Some of you will know just how much Tamoxifen and I hate each other however, I may just have found one side effect that I like.
I had my little break off it over xmas but since starting back on it  I seem to be losing weight for no apparent reason. About 10kgs in 3 mths,

Of course, I think the worst and run off to my gp. She has got to be getting sick of seeing me surely.  Nope, not a listed side effect on her Dr google. But, she considers it to be a significant loss that needs checking out.

By now my brain has got me thinking that the chemo didn't work, its back and spread and I'm about to drop off the perch. LOL  So I request a fully body CT.....hmmmm...she says "haven't you been exposed to enough radiation already?  1 CT =500 xrays!  Wow. 

I opt for the suggested full set of bloods instead.  Everything perfect except for WCC which is still high for some reason, cholesterol dropped by half WTF it's never been this low.  Maybe 2 good side effects???

I've only been able to find one old forum thread on breastcancer.org with a group of ladies saying they had the same.  Everything else I can find is about gaining weight.

If it is the Tamox I might just put up with the rest of the shit side effects with a little less complaining!

So I thought I would just ask the wise and wonderful BCNA members.  Any thoughts?

XOXOXO






  • Please be the precursor to an amazing weight loss discovery! I expect to see you on A Current Affair stat!!
  • Also losing weight on tamox. 3kg in 7 months taking me to 54kg. Starting to look ill...
  • I'm on tamoxifen losing about 1kg per month but still not down to my pre chemo weight, at which I imagine I'll plataeu. If nothing crappy is behind it, enjoy!
  • I lost 9kg on Tamoxifen, at about 1kg a month. But I was eating smaller and healthier meals and exercising, so I wouldn’t have called it unexplained. I then maintained that weight loss without a problem while I was on it for 2 years. Have also maintained it on Femara except for a few months when I had an illness and could not exercise. Have since lost that weight gain too. But always explained by diet and exercise.

    Hope that there is nothing to worry about and you can just enjoy the new you. xxx
  • Stress drops my weight as no amount of dieting while on Tamoxifen seems to shift anything. Happy and fat or skinny and good looking? I am kinda leaning to the happy side of things lol.

  • Since starting Tamoxifen in Dec I have lost 10 kgs, while I am definately eating less, I am not exercising. So it will be interesting to see if I suddenly gain weight when I finish chemo next month. But it could be that the metabolism is affected by the Chemo. I have always been one of those people who look at a donut and its already on my hips. So any tips for not turning back into a donut lol. xx