Calm before the storm
Hi all, We have our first dose-dense AC treatment this Friday for Rebecca and while we're really glad to have some sense of momentum and control now with the treatment plan, I'm trying to get organ...
Forum Discussion
Hi everyone!
@Coastiejas - Thanks - the onco nurses thought the journal was a good idea and I'm already filling it out on day one of treatment - it's pretty useful! I had a quick look at the Osara Health program, unfortunately I don't know of any equivalent up here. I did call the QNMU which, as a nurse herself, Rebecca belongs to, but unfortunately all they have is a support officer and a reduced membership fee for those going through this sort of journey. Also, we were given the option of having a dietician contact us today, so we'll definitely do that.
@Cath62 - Yes, we're just on the Northside, I hadn't heard about that program, but will definitely look into it, thank you! The Wesley is a little bit of a slog from our place (45 mins - an hour depending on traffic), so might be more of a casual visit than something we'd do regularly, but 100% worth checking out.
We've just organised a GP Care Plan referral for a local Exercise Physiologist who we're hoping to get some advice and a plan from - I think we get 5 free consults before we have to start paying. It definitely seems like there's plenty of options out there which is great to see :)
Thanks for the tip on the juice - we've bought the right fruit and veg to do the same and it goes down a treat, so we'll continue to do that as often as possible, especially as Rebecca's appetite changes. We had our first AC chemo today, so we're still figuring out how Bec's body reacts - the actual treatment went very well with no adverse issues during administration - she had a little nausea an hour or two ago, but then managed to get dinner down (and even some chocolates from her work colleague's care package!), but she's now headed off to bed feeling a bit wiped out. We've bought a bunch of mouthwashes, toothpastes and soft toothbrushes to make sure she takes really good care of her oral hygiene. We figure if we get into a routine from day 1, it'll stand us good over the course.
Really appreciate the info :)
George
@Coastiejas - Thanks - the onco nurses thought the journal was a good idea and I'm already filling it out on day one of treatment - it's pretty useful! I had a quick look at the Osara Health program, unfortunately I don't know of any equivalent up here. I did call the QNMU which, as a nurse herself, Rebecca belongs to, but unfortunately all they have is a support officer and a reduced membership fee for those going through this sort of journey. Also, we were given the option of having a dietician contact us today, so we'll definitely do that.
@Cath62 - Yes, we're just on the Northside, I hadn't heard about that program, but will definitely look into it, thank you! The Wesley is a little bit of a slog from our place (45 mins - an hour depending on traffic), so might be more of a casual visit than something we'd do regularly, but 100% worth checking out.
We've just organised a GP Care Plan referral for a local Exercise Physiologist who we're hoping to get some advice and a plan from - I think we get 5 free consults before we have to start paying. It definitely seems like there's plenty of options out there which is great to see :)
Thanks for the tip on the juice - we've bought the right fruit and veg to do the same and it goes down a treat, so we'll continue to do that as often as possible, especially as Rebecca's appetite changes. We had our first AC chemo today, so we're still figuring out how Bec's body reacts - the actual treatment went very well with no adverse issues during administration - she had a little nausea an hour or two ago, but then managed to get dinner down (and even some chocolates from her work colleague's care package!), but she's now headed off to bed feeling a bit wiped out. We've bought a bunch of mouthwashes, toothpastes and soft toothbrushes to make sure she takes really good care of her oral hygiene. We figure if we get into a routine from day 1, it'll stand us good over the course.
Really appreciate the info :)
George