Forum Discussion

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  • Hi, there are several ladies using xeloda on this site, I have been on Xeloda myself for 18 months, initially on 3000mgs per but this had to be reduced to 2000mgs same as you, myself I am doing 12 days on then 9 days off,as this suited me better, perhaps this may be an option for you, there is a certain percentage of the population that do not tolerate it, I have had several breaks, and this has helped a bit, I still suffer from hand and foot syndrome which is sore feet and hands, fatigue and I especially have to keep out of the sun as xeloda and sunlight do not mix, during the day I wear cotton gloves available at the supermarket and sports socks, I have to keep my hands and feet well moisturized, I use a product called dermaveen bath and shower oil which I have found very good, its a matter of adjusting the dosage and a change of length of time on and off, your oncologist is the person to talk to about this,Xeloda is a very good drug, just has crappy side effects,I also get watery eyes and a runny n ose, not much to look forward to I know!! however my cancer markers have dropped dramatically and stayed low now for a long time,see your oncologist and have the discussion with him about how you could change things around, I have Mets in my liver and spine, initially 6 in my liver now down to 2 and lots in my spine, however for me getting the liver mets reduced and gone was the main reason for slogging it out on xeloda,
    let us know how you go,
    wendy55 
  • Hi Ladies, this is my first post.... just wondering if anyone has any feedback /experience with Zeloda? I have only done one cycle ,14 days on 7days off ,2000 mgs /day. Side effects meant I had to stop after the 12th day.Mainly bad rash on my face ,lips feel like they are badly sunburnt and mouth ulcers, also sore feet. Im using a steroid cream for rash on my face (Antroquoril) not much improvement.
    I am hoping my onc  will drop dosage ... as I really was hoping this chemo would be better tolerated!