Forum Discussion
PaulaN
10 years agoMember
Why are the nights so hard
Does anyone know of where you can get some phone support at night? I’m finding the night’s sooooo hard. I've only been getting an hours sleep at night & tonight it was only 30 minutes. This has been ...
Carol22
10 years agoMember
Hi Paula
Unfortunately I can't answer your question but am sure someone else will be able to.
I found that waiting is the hardest part, it's an emotional turmoil you have a little bit of information but no plan on what or where from there - nothing else to focus on except to imagine the worst. It really sucks that you have to wait so long before you can see the doctor and make some sense out of it - I would really question why reports are available to the patient when we are not equipped to interpret them? Just adds to the angst.
Maybe you could phone your family again and tell them you really need them, they may not realise how you are feeling.
Take care of yourself, sleep when you can, you will need your strength - I have found the best thing was to focus on making myself as prepared and strong for the road ahead.
Love & luck xo
Carol