Thank you ladies for your input. You make some good suggestions, however I'm not sure how your suggestions are any help to carers! I am asking what cares wish they knew (not cancer patients). Eg when to call for help, when to suggest your partner should take maxalon or dex (and given my wife has been on a 4 mg dose of dex for more than 12 months and will never get to come off it due to inoperable brain mets, I think I have this covered.) How to deal with chemo nurses, when to put your foot down and insist they listen to you.
It may seem picky but this is exactly the problem, you seem to think we need told what to do and what our issues are. Well you aren't even close to the mark of knowing what we want or need. So instead of you telling me what you think I need to know, how about bothering to find out what I my (and other male carers) needs are. As a suggestion how about you ask your partner next time.
Good luck in your struggles
Simon
