Forum Discussion

SharonMolenaar's avatar
14 years ago

Waiting for surgery

Hi everyone. I was just wondering how long everyone had to wait for surgery . I'm having a double mastectomy on Wednesday and that will be three weeks after my diagnosis and four weeks since my ultrasound and biopsy. I have a grade three aggresive cancer that is triple negative. I'm trying to be positive but I keep just thinking that this time I am waiting might be the difference whether the cancer spreads or not. At the ultrasound the tumor was up to 9mm but I just think by wednesday it will be much bigger and will have gone to my lymph nodes. Has anyone waited up to four weeks for surgery and things hadn't really changed. I'm trying to relax and tell my self it still will be early breast cancer but I just can't seem to convince myself. I'm just a wreck with all of this. Xxxxxxxxd

19 Replies

  • Hi Sharon - just wanted to say good luck for Wednesday. The waiting is certainly the hardest part although keep focussed on knowing that they will be gone and then you can get on with dealing with whatever else needs to be dealt with.

    After surgery, keep on top of the pain and when you get home, make sure you say YES to any offers of help with no guilt.

    My mother had BC at 36 then again at 48 and is now a healthy cancer free 72 yr old. So is always better to try to focus on the good stories and not the "not so good". 

    Remember the sun is always shining even on a cloudy day - just because you cant always see it, doesn't mean that it is not there giving us the strength we need.

    Keep posting in the forum cause we are all here to listen and help where we can.

    Bye

    Leanne :-)

    (PS I had bilateral mastectomy 2 yrs ago at 45)

  • Hi Sharon - just wanted to say good luck for Wednesday. The waiting is certainly the hardest part although keep focussed on knowing that they will be gone and then you can get on with dealing with whatever else needs to be dealt with.

    After surgery, keep on top of the pain and when you get home, make sure you say YES to any offers of help with no guilt.

    My mother had BC at 36 then again at 48 and is now a healthy cancer free 72 yr old. So is always better to try to focus on the good stories and not the "not so good". 

    Remember the sun is always shining even on a cloudy day - just because you cant always see it, doesn't mean that it is not there giving us the strength we need.

    Keep posting in the forum cause we are all here to listen and help where we can.

    Bye

    Leanne :-)

    (PS I had bilateral mastectomy 2 yrs ago at 45)

  • Thank you so much girls . 48 hours and the surgery will be over . Thats all the time this horrible cancer has in my body . I'm such a worrier but I know I'll have the strength when I know what I'm facing . I think all the doom and gloom on the Internet about triple negative is getting to me . If you believe what you read , being a young girl with that seems like the worst . I'm just going to try and focus on the surgery and that I should feel better after that . Thank you again x x x
  • Thank you so much girls . 48 hours and the surgery will be over . Thats all the time this horrible cancer has in my body . I'm such a worrier but I know I'll have the strength when I know what I'm facing . I think all the doom and gloom on the Internet about triple negative is getting to me . If you believe what you read , being a young girl with that seems like the worst . I'm just going to try and focus on the surgery and that I should feel better after that . Thank you again x x x
  • A week feels like forever - but it will pass and you will be on the other side soon enough wondering where the year went. Anxiety and stress can cause pain, wondering what' going on inside your body. Push it away. Focus on the positives, moving forward, BEAITNG IT.

    No-one else can understand how we feel, that's why this site is so valuable - because WE all do. But let them help you, use their love and support to keep you UP. I am a firm believer in the power of positive thinking.

    Take special care of yourself

    magicmum

  • The ache may be referred pain from the biopsy. I know I felt similar. 

    It could be an unrelated reason. Eg referred from neck 

    It is unusual for early cancer to cause pain ( I know there is never a never in these types of things).

    There is chemo to mop up any stray cells if it was to be related to that.  For me Chemo wasn't too bad at all.

    Hope that helps

    Hurry up Wednesday. Maresx

  • Thank you so much to everyone who has taken the time to reply . They give me such comfort and hope . This waiting is like a form of torture but I guess it's just getting me strong for the things ahead . I have this terrible ache under and down my arm on the same side the breast cancer is . It just feels like it must have spread . The breast care nurse says its normal to feel these things . Well it's less than 72 hours and this horrible thing will be out and then I can move on to destroying any other cancer cells . Thanks again girls . My friends and family are trying their best but unless you have been in this position there is just no way to comprehend it . X x x x
  • I have not posted on this website before but have looked and gained comfort many times. I just wanted to say hope all goes well on wed.  I agree the wait is the hard part.  I can remember waiting for my bilateral mastectomy and worrying (I only had to wait a week, so sorry I don't really fit your brief). I had two cancers 2.2 and 2.9 cm, both grade 3 triple negative and ER positive respectively ( my breasts were having an eachway bet). My nodes were negative and 15+ months post diagnosis no sign of recurrence (cross fingers).  My point is that thankfully your cancer is sounding much smaller which means hopefully good news on the lymph node front.  All the best.

    While waiting these things may be useful to do ( helped me):-

    Try getting a great collection of uplifting songs on your ipod (my daughter did mine, I hope legally)

    Borrow a computer chair with arms for when you get home (my neck and shoulders got tired without support)

    V shaped pillow was a godsend-Target has cheapies.

    Also one of those travel pillows for your neck-blow up one from chemist cost$7.

    Get some cups and plates down from high cupboards ready for when you get back (not meant to raise arms above 90degrees and you will want a cup of tea when you are home alone). I have many other tips that I am happy to share but I am sure they are covered elsewhere in this website. Also delegate jobs if no time-people want to help.

    Hope all goes well, Mares

     

     

  • I waited about 2 weeks for surgery with my first bout of bc (2003)-my lump was 2cms and surprisingly,not in any lymph nodes.I waited 3 weeks from core biopsy (or 4 from mammogram) for the next bc surgery(2010) lump was 3cms. It was still classed as early bc and the same tumour.Which just goes to show that those few lingering bc cells were happy to stay put in my breast for 7 years! I had body and bone scans and they were clear.Now I know my pathology was different to yours but I just want you to read a positive story.I know the waiting is terrible- keep busy,also do things that calm you like a warm bath?glass of red?meditate and deep breathe telling your body to contain those little buggers in your breast.Basically just do what works for you.The unknown and not having control are the hardest parts - so  anything you can do to help yourself be proactive with your health or treatments can make you feel more in control.Good luck for Wednesday-it will be here before you know it.

                                     Tonya xx