Forum Discussion
Verzenio blues
I am in early stage B/C and have a high risk of recurrence (7 cm tumour in breast, 3 affected lymph nodes, 27 removed from armpit, hormone positive, Stage 3, Grade 2). My oncologist was going to put m...
Hi, @Jenni22. Thanks for contacting me. The Verzenio can be a rough journey especially after we had little time to recover from the in-hospital treatment. I am interested to hear about your experience, it hits us all differently, doesn't it? Getting COVID-19 on top of everything else is a bummer and would be hard on top of hormone blockers and Verzenio. Does that mean you are going to take 50 mg twice a day?
Since I posted here, I lasted about two weeks on 150 mg, and about a month on 100 mg before my oncologist reduced the dose to 50 mg twice a day. I was pretty miserable with daily D and fatigue. I am coping better and would like to stay on it for two years (fingers crossed). I asked my oncologist for stats that indicated my recurrence risks, so I could make an informed choice. The lowest dose is more manageable but I still get bouts of D and fatigue. Did you find that things settled down a bit after three months? I am not used to being this tired! I am also taking it step by step. Good to hear from you and have a lovely weekend.
Since I posted here, I lasted about two weeks on 150 mg, and about a month on 100 mg before my oncologist reduced the dose to 50 mg twice a day. I was pretty miserable with daily D and fatigue. I am coping better and would like to stay on it for two years (fingers crossed). I asked my oncologist for stats that indicated my recurrence risks, so I could make an informed choice. The lowest dose is more manageable but I still get bouts of D and fatigue. Did you find that things settled down a bit after three months? I am not used to being this tired! I am also taking it step by step. Good to hear from you and have a lovely weekend.