Forum Discussion

Cate64's avatar
Cate64
Member
10 years ago

VENTING..... AGAIN!!!

I am having an ANGRY day......

For 6 years, ever since my initial diagnosis & surgery in 2008, at every checkup I expressed concern re the little lump in my armpit to be given each time a dismissive wave of the hand & "its just a lymphnode!!!"

& they only investigated this time when that little lump started causing pain & my GP sent me to see her & only 'because of my history' .... I had the same history 6 years ago & was dismissed with a wave of the hand...They are calling it a recuurence BUT to me its not a recurrence but has been there since the beginning slowly spreading..

Now I am fighting for my life & feeling so let down by the very people who are supposed to be offering me 'outstanding care'.. How am I supposed to trust the treatment recommendation or anything they tell me now??

 

 

 

6 Replies

  • Hi, That is just horrendous for you. I so hope and pray that you do indeed win this fight for life and in doing so find the strength to give it all you've got. This, as we all know, does take a lot of strength especially when you find this out after wanting it checked for so many years and no one taking any notice. You have every right to be angry and upset. Just one day at a time is all you can do. x

  • My god,I would be furious!! At my last checkup my surgeon sent me for an ultrasound on swollen lymph nodes.It turned out to be ok,but he still wants to see me next week,which is 6 weeks after the ultrasound.After reading your story,I won't even consider not going,as I have been.We can NEVER be too careful after BC can we.? I hope your chemo goes smoothly,and you will soon be well again:) Cheers Robyn xox

  • Hi there

    you have every right to be angry. I hope that you have been able to express this anger to your specialists and gp. Unfortunately medicine is not an exact science but I am very surprised given your history that they didn't at least do some tests on it. If you don't feel comfortable with decisions that your doctors make in relations to your health, stand your ground and ask for tests. If they still don't come to the party, get a second opinion. 

    I'm really sorry that you are having to go through this all again. Perhaps get some counselling to give you strategies for dealing with the anger so that it doesn't affect your health. Take care. Karen xox

  • Darn it, I would be spitting chips too! On the other hand, actual cancer is hard to diagnose with many biopsies and tests showing its not actual cancer. If it was all slash and cut, no one would have any boobs or arms left.

    My niece is a Dr who had an aggressive carcinoma removed from her leg and she thought her lymph node was up too. The specialist said stop touching it, unless its 1cm or so your playing around with it will make it feel bigger. Apparently she is all clear but makes you wonder. 

  • Thanks Di,

    That's the odd thing, I don't feel at all ill... Little bit tired from the Chemo maybe but other than that it is life as usual for me, I get up everyday & go to work. I parkrun on Saturdays (except for Chemo week then I volunteer at parkrun instead because my boys & hubby make me).

    I suppose I am lucky to so far be coping so well with AC Chemo with relatively no side effects, the only real one is loss of hair which I don't even hate, it makes getting up & getting ready for a day in the office that much easier when I just put my hair on instead of washing & drying it.

    I have my anger/vent days of which today is one but on the whole I feel well not ill..

     

  • Hi there,

    I am so sorry you are going through this, i understand the angry days and i don't blame you as when you are sick like this we do expect someone to be looking after us and our treatment, i hope you feel better soon, just take 1 day at a time and it is ok to be angry

    Take care

    Di