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Mich_x's avatar
Mich_x
Member
12 years ago

UPDATE post radiation morphea/necrosis/fibrosis.

Hey Luvlies

Just thought I would give you a quick update on the poor old alien boob from the post radiation morphea/necrosis/fibrosis.

You will remember I ended up going to a private surgeon after my 10 months of every possible testing and procedure with no diagnosis and then the private fellow sees me for 5 minutes and I am finally given a diagnosis as mentioned above of which my Rads onco confirmed and was devastated.........Note - this diagnosis is extremely extremely rare.  I am one of 54 cases in the whole wide world so I am "special".

Anyway I am a star blazer for a new procedure for what I have....  It is called fat grafting which has become very popular now but of course in my case it is trial and error.

 Anyway what they do is they take fat from another area of my body (liposuction) and put it through a centrifuge to seperate the fat etc from stem cells then stem cells are injected all around the nipple and in to the alien breast.  This is to try and rejuvenate the dying cells.  In doing this it is adding to the volume of the breast which is already swollen, hard and feeling hot so you can imagine how uncomfortable I currently am and this is 1 1/2 weeks later. 

The plan is that this should soften the breast in time.  So I have been back to see the PS following my procedure to have my stitches out and to check all the small wounds were healing and all is good. He has said he will see me in 3 months so I have a reprieve from him for this time so one less appt to worry about for a while.  Do you girls get sick of all your never ending appointments you have to book in to your diary???

Anyway I don't know about you luvlies but I am going to sit back and enjoy my Christmas and New Year with all my luv'd ones and try again with my New Years wish that 2014 is going to be an amazing year as my so called lucky number 13 definitely let me down.

 I would like to wish you all a joyous Christmas with all your family and friends around you and to hope for you that 2014 is as amazing for you as it will be for me.

'Just remember how far you've come, not just how far you have to go!!.

You are not where you want to be, but neither are you where you used to be!!."

 

I reflect on this as I continue my ongoing journey now 2 years since my original diagnosis.  I have come such a long way and so have you luvlies.

Luv today tomorrow and always, Mich xoxoxoxoxo

 

21 Replies

  • Wow Mich,

    You are one special lady....& an inspiration to us

    LOVE that quote...just fab!

    Great you are on track for a fantastic 2014...& I'm sure your grandkids/kids are in for some spoiling! Have a great Christmas!

    Big hug Jen x

     

     

     

  • Oh yeah my luvly I sooooo special :-)

    Fanx for the compliment.  That was actually a part of my old look when I had just had my hair straightened before BC.  It not such a good look now but I am working on that as well......

    You make sure you enjoy enjoy enjoy and get some time out when you can.

    Luv always, Mich xoxoxoxo

  • Fanx huny pot

    I am blessed to know you.

    Luv and my very best wishes coming your way.  Mich xoxoxoxoxoox

     

  • Boy you are so special.  I must say your new look is fantastic.  Very noice.  I applaude your courage and continuing determination to "get it sorted"  Best wishes for a great Xmas and yes 2014 will be good for you. XLeonie

  • I have no words. You are my inspiration. 2014 has to be a better year for you. Love Janey xxx
  • Fanx Sweetness and a big fat "same to you" for you, your family and loved ones.  Stay safe and happy.

    Luv always, Mich xoxoxoxo

  • I was wondering yesterday how you were,as I hadn't seen you on here for a while.I hope you enjoy your Xmas with family and friends,and get ready to face your new challenges in 2014:) Hopefully it will be YOUR year Mich.Love from Robyn. xoxo
  • I was wondering yesterday how you were,as I hadn't seen you on here for a while.I hope you enjoy your Xmas with family and friends,and get ready to face your new challenges in 2014:) Hopefully it will be YOUR year Mich.Love from Robyn. xoxo
  • And the same to your and your family luvly Deanne.  All the best.

    Mich xoxo

  • I was hoping everything was going ok for you Mich. Good that you get a break from appointments at least for a while. Have a lovely Christmas with your family and I hope the alien boob improves soon. Let 2014 be a wonderful year for you. Deanne xxxxoooo