NICO_73
10 years agoMember
UNDERSTANDING IBC
Hi All,
I am very grateful in finding this group for IBC. Since my diagnosis in June 2015 I have endlessly researched the Internet for up to date information about IBC. I have discovered a few good...
Hi Nicole, it's Lisa from the Policy Team. It is great that you posted in this group as it is a really good place to get support and hear about the experiences of others.
As you've said, there is a lot of information out there and it can get quite overwhelming. While there is a lot of good quality information available online, there is also information that is inaccurate, out-of-date or quite convoluted. I just wanted to note that statistics you may come across will be general in their nature only and that not all information will be relevant to you and your specific diagnosis or circumstances. If you have any questions about information you find, it is always best to talk to your doctor or other member of your treatment team.
Best wishes,
Lisa