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Josie13's avatar
Josie13
Member
13 years ago

Tykerb

I'm sitting up in my bed looking at the Tykerb box on my my table knowing I should start taking them but feeling worried about what new wondrous side effects I can expect. Other problem is I have been feeling much better and enjoying feeling normal!!! Also am off on two weeks holiday and don't want to have any problems whilst away. Read all the side effects on the Internet so feel nervous. However, results for Tykerb seem pretty good. Any advice about managing Tykerb would be good as sick of being sick! At least it doesn't make hair fall out as have already done that 12 years ago. Do many of the treatments for secondary involve hair loss I wonder? Must find out!

2 Replies

  • Josie - I've done the tykerb and Xeloda combination - are you doing both or just Tykerb? Side effects are exacerbated with the combination - I found tykerb on its own very tolerable.
  • Hi Josie

    This is Annie from BCNA. Glad to hear you are enjoying feeling more normal.

    I thought I would quickly jump on here and let you know there are a few other blog posts about Tykerb. You can do a search using the top right search panel (here's one I prepared earlier- http://www.bcna.org.au/search/node/Tykerb)

    Not sure if there are other comments about side-effects but it may be worth a shot anyway.

    All the best Josie, and hope you enjoy your holiday :)

    Annie