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debkell's avatar
debkell
Member
13 years ago

Two thoughts/questions

Just wondering if any of you other lovely ladies has been diagnosed as hypothyroid post treatment and whether any one else has debilitating peripheral neuropathy from taxane treatment..

I'm battling both and its 3 years post diagnosis. My oncologist tells me there's no link between hypothyroid and tretament, but I'm wondering if  the persisting peripheral neuropathy is related to teh thyroid issue..

I was TNBC stage 3, 13 mm, lumpectomy, chemo, radiation... and touch wood, no recurrence.

 

 

3 Replies

  • samkclarke's avatar
    samkclarke
    Member
    13 years ago

    Hi Debkell,

    Yes, I have had problems with my thyroid post treatment.  Origanlly diagnosed with hyperthyroidism and then went the opposite way with carbimazole. Now officially thyroidtoxicosis so on both carbimazole and thyroxine to try and stabilise (for one year). As if we haven't had enough going on! Specialist slowly peeling back to see what happens.

  • Michelle_R's avatar
    Michelle_R
    Member
    13 years ago

    Hi - firstly, congratulations for 3 years post diagnosis! That is wonderful - hope I will be as lucky. You have done so well.

    I have not been diagnosed as hypothyroid, but did have some peripheral neuropathy after 12 weeks of taxol - mainly my feet. I found that walking briskly for 30 minutes a day really helped it disappear, and on the days I didn't walk it sneaked back. Sometimes it was the last thing I felt like doing, but the perseverance paid off, and 7 months post-chemo I hardly notice it any more. Did you walk too?

    Like you, I was TNBC and had the full treatment - breast surgery/chemo/radio/hysterectomy - and I am still walking. Sorry, I don't know anything about hypothyroidism - I hope someone else can help with that.

    I hope you are feeling better, and again, congratulations on a great achievement.

    Michelle x