Hi, I had bilateral mastectomy with immediate TUG reconstruction Sept 2017 and fat grafting Sept 2018, waiting for hopefully my final surgery. I have responded to this msg via FB, but I can share again...I had bad nerve pain and the feeling of hot knives stabbing into my legs. I still have uncontrollable tics at times. I am currently trying to increase my fitness levels hoping that will help. It took me a good 6 months to feel any type of normal...hope this helps a bit...when I had my surgery I couldn't find many resources either, I did not have chemo...but also had invasive lobular Stage 2...lumpectomy Dec 2014 the 36 radiation zaps. I had my surgery done prophylacticly.
Kind regards xx