Triple negative result

hi Sarah again

Thought I would let you know all of my family also live in Melbourne, I live on the Gold Coast, single mother, with only my daughter with me, she is currently finishing heaps of assignments for Uni, she can do only minimal for me at present and has apologised for not doing any more, but know she will once all big assignments are done and has more time.

i have a few great girlfriends for support which helps me, and a male partner who can only do minimal he takes me to my chemo treatments which are 3 weekly, like your mum also.  Yes having that furry/fuzzy brain for those first few days is another way of putting it. 

My next treatment is Thursday not looking forward to it, but will be there, as usual for the 2 hrs duration and fall on the couch when home.

Anyway, is your mum interested in getting on to this site to relay her feelings. Just let her know I am 58 with an 18 yr old daughter(yes had her at 40, late starter). Thanks for sharing her story with me.

Debbie 

Hi Annie, 

I can imagine how anxious you are - I can remember when it was all first happening with Mum, were in a state of absolute shock. Mum had radical treatment too - mastectomy, total axillary lymph node clearance and is now going through 6 rounds of fairly toxic chemo (not sure about radio at this stage as it had only spread to 1 lymph node). You just have to think that you are attacking this with everything in your power - if it's aggressive, you'll be aggressive back. If they do as much as they can at the beginning when it's contained, there is less chance of it recurring - hard in the short term, better in the long term. 

Mum has also been told that she is eligible for the genetic testing because of the type of cancer (triple negative) and because she is under 50. She will be doing that next year after her chemo has finished in January. Her cousin also has breast cancer but not the same type as Mum's and it was on her Dad's side, so not sure of the genetic link there. I have heard that there is a definite link between breast/ovarian/bowel cancer so if there is any history of that in your family, you might want to chase it up. Can be hard without any family documents handy! Good luck with it all, warm wishes, Sarah. 

Its is comforting to know youall are going through these treatment and keeping positive, i am now booked in for further surgery to clear the margin on thursday and when that has healed on to 6y-7 months of chemo and then radio. Its a bit much to take in at the mo, and im extremely anxious about the radical treatment proposed.  Whilst doing a bit of research on this type of bc it seems to be genetic, does anybody have any info regarding the genetics of triple negetive bc.  I have no family history past my mother who has passed away, and no relatives to ask about this. Im trying to peice together my linage but with no documents or family history to rely on it is extremely frustrating, apparently I wont see a genetist for a while and would love your thoughts on this.

 

Its is comforting to know youall are going through these treatment and keeping positive, i am now booked in for further surgery to clear the margin on thursday and when that has healed on to 6y-7 months of chemo and then radio. Its a bit much to take in at the mo, and im extremely anxious about the radical treatment proposed.  Whilst doing a bit of research on this type of bc it seems to be genetic, does anybody have any info regarding the genetics of triple negetive bc.  I have no family history past my mother who has passed away, and no relatives to ask about this. Im trying to peice together my linage but with no documents or family history to rely on it is extremely frustrating, apparently I wont see a genetist for a while and would love your thoughts on this.

 

Hi Debbie, 

Yes, Mum also gets what she calls "furry brain" for the first couple of days after her FEC treatment. You do have to look on the positive side and think - "at least I get 2 normal weeks." That is the best way to think about it. 

Trying to be as supportive as I can for Mum - I am in Melbourne and the rest of my family is in WA so find it harder sometimes I think! Just have to take it all one day at a time. I bet your daughter is doing all she can for you too. 

I will pass your on well wishes and all the same to you! 

Warm regards, Sarah

Hi Debbie,

My Mum has triple negative breast cancer - early stage 2, grade 3, had only spread to one lymph node. She had a right breast mastectomy and 37 lypmh nodes out - her surgeon was very thorough, thankfully! I just wanted to let you know that she is on the same chemo treatment as you - has done her 3 rounds of FEC and will start on Docetaxel in a couple of weeks for another 3 rounds. Not sure if she has to have radio yet. There are a lot of different treatment options out there for this triple negative thing and so much of it is based on your individual situation. Mum is doing really well with chemo so far though, hope you are too! There is definitely light at the end of the tunnel. Warm wishes, Sarah

Hi Debbie,

My Mum has triple negative breast cancer - early stage 2, grade 3, had only spread to one lymph node. She had a right breast mastectomy and 37 lypmh nodes out - her surgeon was very thorough, thankfully! I just wanted to let you know that she is on the same chemo treatment as you - has done her 3 rounds of FEC and will start on Docetaxel in a couple of weeks for another 3 rounds. Not sure if she has to have radio yet. There are a lot of different treatment options out there for this triple negative thing and so much of it is based on your individual situation. Mum is doing really well with chemo so far though, hope you are too! There is definitely light at the end of the tunnel. Warm wishes, Sarah

Hi there is a group here for triple neg that you can join and a recent Post on triple neg as well. Bit overwhelming to start with but found this site very good. My cancer was triple neg grade 2 stage 1 no cancer in lymph nodes . I had a lumpectomy so I had 4 cycles of TC chemo and 30 days of radiation. I am sure we get to understand better by asking questions on here. Hope you are feeling ok. All a bit overwhelming . I felt a bit like I didn't have any control over some things but it's all part of the journey. Wishing all the best . Be kind to yourself Deb x