Triple Negative Experience

Hi Jeanette, through my treatment my Ongologist has subjected me to everything mediaclly possible, that is Operations, Chemo (mixture of all different sorts), plus radiation plus genetic testing for BRACA. I must admit I was able to take 8 months off work and just concentrate on getting better. If I felt tired I rested however I understand that everyone has different personal circumstances. Once I started my radiation treatment I actually started to get my energy back and I was able to do more. The chemo was definately worse than the radiation treatment.

In relation to risk reducing surgeries I think we all have to look at this from a personal perspective. Speak with your family and friends however for me I have made the decision to have a full hysterectomy and also a double mastectomy. Although I am 16 months in the clear, unfortuantely as you know for Triple Negative there is no drug we can take to prevent reoccurance like the hormone recptive cancers. I have been tested for the BRACA gene however my tests came back as inconclusive however my ongologist has advised that he is treating me as though I am BRACA positive. Based on all of my treatments I have a 10% chance of it coming back however with the above mentioned surgeries it reduces this to about 7 - 8 %. I know this is only a marginal reduction, however it is a reduction all the same. Again it is personal preference and circumstances however I have opted for this surgery as I view it that anything I can do either personally or medically to prevent reoccurance I am going to do. I survived the first lot of treatment and I am sure will succeed again however why subject ourselves again if we do not have to. I know I would have had this surgery as a preventative prior to my diagnosis if I knew that I was high risk., although with no family history I wasn't even looking. Where abouts in Australia are you?