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Renata's avatar
Renata
Member
15 years ago

Triple negative breast cancer

It seems to be that while I have met a few women in their 30's that have grade 3 breast cancer I have yet to meet one that has or had a triple negative cancer like myself. I was wondering how many other women in their 30's have the same as myself and how their treament is going.

50 Replies

  • Hi Jaqui,

    The encore program sounds good wish we had one up here on the Sunshine Coast.  It sounds like they either give all 3 at once or Taxol seperately depends on the doctor. How are your nails going. Mine aren't too bad though some are starting to weaken. I hate those cold gloves with a passion.  My oncologist also said to me that they will not be doing anymore scans it will just be a case of wait and see. Did yours say the same. Will be happy when treatment is finished but also dreading the waiting game.

    Regards

    Renata

  • Hi Renata,

    I had the same diagnosis and treatment as yourself...I think its the standard treatment for TNBC. I had the AC fortnightly 4 times and then the Taxol weekly for 12 weeks and have just finished!!!! It is sooo exciting to actually finish chemo. Radio in about a month the same as yourself. I am in NSW and we are lucky to have a Gov program called Encore specifically for women who have been diagnosed with BC. We meet once a week and enjoy education about different subjects and then learn exercises to promote the use of affected arm.

    Good Luck with your last chemo and continuing treatment, Jacqui

  • Hi Amanda,

    Thanks for your reply and welcome. I am around the same age as your friend being 37. It is good to hear that she is doing well after 3 years.

    Renata

     

  • Hi Jaqui,

    I had a grade 3 tumour  1.5cm and have had a lumpectomy and lymph nodes removed and have one more round of chemo in 2 weeks then radiation therapy after a months rest. Can I ask what the encore program is? Triple negative does seem to be the rarer of the breast cancers I am finding. What chemo regeme were you on? I am on TAC Taxotere, Adriamycin and Cyclophosphamide every 3 weeks.

     

    Renata

  • Hi Renata,

    I was diagnosed with Grade 3 TNBC last Nov.,however I am in my 40s. I had a Mastectomy  and just finished Chemo last week. I start Radio in about a month. When I was diagnosed I was told TNBC was quite rare but there are 2 other women in my Encore programme who are about the same age and with the same diagnosis. Where are you up to with your treatment?

    Jacqui

  • Hi Renata,

    I was diagnosed with Grade 3 TNBC last Nov.,however I am in my 40s. I had a Mastectomy  and just finished Chemo last week. I start Radio in about a month. When I was diagnosed I was told TNBC was quite rare but there are 2 other women in my Encore programme who are about the same age and with the same diagnosis. Where are you up to with your treatment?

    Jacqui

  • Sorry just realised that you told me you were 28 must be the chemo brain in action.

  • Just cruising the blogs.  Lovely to see you.  How are you going?  Has your hair grown really long or do you still have it short.  I can't sleep. The chemo prep drugs are hyping me up in readiness for the big drop on Sunday!!!! XLeonie

  • Thanks Megs, will give you a call soon as just had chemo yesterday and am a bit tired. If you don't mind me asking how old are you now?

     

    Renata

  • Hey Hey Renata, hope ur treatment is going well???? dont know if i fit the profile but i had grade 3 and was triple neg but im only 28 so dont know if that helps??? but if u wanna chat ask away or if u want to talk more personal my number is 0437299338 :)

    Megs xxx