triple Negative BC

Nice to hear from you, Serenity11. I've joined TNBC group and it is really good to be able to read all the posts from others with TNBC. I find the different chemo interesting, and will definitely be asking the oncologist why she's decided what she has, which is FEC100 x 3 then Paclitaxel x 9. I'm also going to ask about the "poor prognosis" I read about in every damn article - as my surgeon didn't indicate it was all that poor ie 82% of being alive and well at 5 years is what he said and it doesnt seem so bad. I know that other BC women have better odds than that but still, poor seems a bit harsh. I guess some would say why bother with semantics but for me I don't like to think my prognosis is poor. I just pictured lots of women sitting in their homes worrying about different issues, just like me sitting here writing this. We all have stuff to worry about and process in our own ways but it sure is nice to be able to put it down in a blog will be read by someone who understands.

I have TNBC too.  There are about 60 of us in the TNBC group so hop over and have a read.  This Thursday is my last chemo, then a break then radiation.  I had a lumpectomy/wide excision.  4 x EC, 12 x Taxol, 20 radiation.  My oncologist will be running a series of tests post radiation.  His thought process has always been to deal with the treatment in steps that both the mind and body can deal with.  You are quite right when you say there is alot of information out there, and it is overwhelming in the first few weeks.  However there are some great sites out there (not unlike this one) that provide information that is easy to understand and useful.  I plowed through them in the first couple of months and then I wittled back to a couple.  The most important thing is that they helped me to ask the questions about my treatment etc.

Michelle is rights when she says ask anything.  Someone on here has  usually experienced something similar.

Be gentle on yourself.  Take care

Hi Michelle, I will check out the TNBC group, thanks for the advice. I think I should stop reading academic articles on the web as they are depressing, but something is driving me to do it. I'm trying to get some control, through knowledge, but it isn't working well. I agree, it was a great relief when the nodes and then the scans were clear, and we are very lucky there. Are you going to a geneticist? I've been referred because of the TNBC and a family hisory of BC and ovarian cancer - my mother's two sisters and my grandma (Mum's Mum). Might go get a pomegranate juice with sparkling mineral water. I'll try your trick with the wine glass. One of my work colleagues told me that one today, too. Best wishes Mary

Just read your latest post.  I am triple negative too, so ask any questions you want and if I can answer them I will.  Hold the thought that your nodes were all clear, and you are starting from there.  So were mine, which was a vast relief, and some of our lovely friends were not so lucky.  None of us want to be here, but it is what it is, and we slip into survival mode and see it through. The stories of the TNBC group are worth reading - there are quite a number of us.

I have been drinking Lite ginger beer in a wine glass - not too bad actually.  All the best - Michelle x

Just read your latest post.  I am triple negative too, so ask any questions you want and if I can answer them I will.  Hold the thought that your nodes were all clear, and you are starting from there.  So were mine, which was a vast relief, and some of our lovely friends were not so lucky.  None of us want to be here, but it is what it is, and we slip into survival mode and see it through. The stories of the TNBC group are worth reading - there are quite a number of us.

I have been drinking Lite ginger beer in a wine glass - not too bad actually.  All the best - Michelle x