pacwood
15 years agoMember
Triple Negative BC
Hi All.
Anyone else out there with a triple negative BC diagnosis? I have started a group for anyone interested in joining and sharing their stories?
Hope to hear from you soon, xo Christie.
Hi All.
Anyone else out there with a triple negative BC diagnosis? I have started a group for anyone interested in joining and sharing their stories?
Hope to hear from you soon, xo Christie.
TAC is named after the initials of the chemotherapy drugs used, which are:
I couldn't believe there was so many treatment, how do the Dr decided which ones to do. I was so worried how I was going to go with my first treatment. My fear were right and now I know to trust myself. I didn't feel well at all 3 days after my first round by day 9 I was so ill, that I woke my hubby up at 4 am and said take me to hospital. I was put in for nearly a week. I went neutropenic. The Dr keeped asking of I had the needle the next day, which I did, the day clinic did it. So no wonder I felt bad , no white or red cell in my system and I had an infection somewhere. Not hard when everyone I tried to stay away from had the flu. So trying to get myself all pumped to go and do round 2. I was ready to say no more, dont care. But I know I have to do it. Dr said they will reduce my strenght. So fingers cross. Still no port put in so I wonder how mant times to be jabbed this time. It took 3 Dr and 5 times to get blood the other day. Sorry for my rant and thank you for all being there. Hope you are all doing great and hope you treatments are getting better. xx
Hi Christie,
Thanks for the tips with inner health plus capsules. I'm having the same issues as you.
Will be doing round 5 of FEC next week, but so far so good. The only prob was that l almost fainted whilst the nurses were trying to take blood during last chemo. I was dehydrated, so it took them a long time to take blood. It just all got to my head. Hopefully won't go through that again.
Yeah just two more to go!!!!
Liz :)
Hi all.
I have been MIA for a while! Kids and life keeping me VERY busy! Any way I have completed round 3 half way now! No more nasty FEC chemo, my poor arm veins are like elastic bands that are streched to breaking point. Extending my arm is very hard now, but I persist with the pain and keep streching the arm and much as I can.
So far the worst effects for me have been the digestive upsets. My tummy does not sit well. I have been taking inner health plus capsules to try and replace the good stuff and they do really work! They are awesome for conteracting thrush also without having to use medications!
Next round will be docetaxel, can any one shed any info on how they felt on this drug??
xo Christie.
Hi all.
I have been MIA for a while! Kids and life keeping me VERY busy! Any way I have completed round 3 half way now! No more nasty FEC chemo, my poor arm veins are like elastic bands that are streched to breaking point. Extending my arm is very hard now, but I persist with the pain and keep streching the arm and much as I can.
So far the worst effects for me have been the digestive upsets. My tummy does not sit well. I have been taking inner health plus capsules to try and replace the good stuff and they do really work! They are awesome for conteracting thrush also without having to use medications!
Next round will be docetaxel, can any one shed any info on how they felt on this drug??
xo Christie.
I doing better then I thought so far, feeling a lite headed and belly a little funny, keeping with the small plain meals and no diet coke :( feeling a more drain easliy. But being totally spoilet by hubby xxx Will see how the rest of the week goes. hope every one is doing ok with the rounds
Hi Kerrim,
I know how you feel having being diagnosed on 6-6-11 myself I didn't think the test were ever going to stop they sounded scarey but in reality they weren't really it's just all the prep & waiting that gets to you the most. I have my 2nd round of Taxetere this Thursday but I have to say I was soooo scared before my 1st chemo I just wanted to run a mile but after a couple of calm me down pills the chemo could not have gone smother, no reaction to the chemo at all much to my relief and my side effects were really minimal....we shall see how lucky I am after round 2. I'll keep you posted :-)
Good luck with everything, Brightest blessings, Susan xxx
Hi, i was just diagnosis with Triple Neg BC, I had a lumpsectompy and start chemo on the 29/08/11. Was glad to find this site as it is hard to get my head around the treatments and all that you have to go through to hopefully be cured
HI Christie, Wow...that is one quick way to lose your hair there one second and gone the next :-0 I think I shall have a wee cry about mine too as it is very thick and just how I've wanted it for ages and then I get diagnosed. I'm having the genetic testing done because my mum was diagnosed at age 52 with BC and unfortunately had spread throughout her body she made it until I was pregnant with my twins and past away peacefully with all of us there with her at 57. She was the 1st one that we knew of with it but last night I recieved a phone call from my other aunt to tell me that my mums sister was diagnosed 3 years ago now with BC "close family ties hey" :-D. I want to give my 6 kids a chance to be tested should it come back positive which I think It just might, anyway I'll find out soon enough! Now my treatment.......I am have 4 rounds of TC and then 6 weeks of radiation for 5 days of each of those weeks and hopefully thats it. I was pleased to find out that Taxatere is a natural form of treatment as well its from the Pacific Yew Bark tree which kind of made me relax abit more knowing that it wasn't something synthetic. I know It must sound odd me saying that but I just found it a little more comforting know they were poisioning me with a natural product! haha....So i'm day 7 after chemo today so I have a few more days with my thick hair and as soon as I see it's starting to thin I shall wiz it all off! I'm feeling quite ok and I hope that round 2 on the 25th of August goes just as smoothly....I'm willing it to :-) Anyway Stay positive and calm,
With brightest blessings Susan xxx
Good to hear you are feeling good after round one. I too felt pretty good by day 6! No major issues other than the tiredness.
My hair by day 2 felt dead. It was dry and yuck. By day 12 it started coming out and yesterday was day 14 and Im bald. It just all came out in the shower! Very confronting and I did have a cry in the shower. I knew it was gonna happen but I was not prepared for how quickly it occured!
Hope the genetic testing goes well. I will be doing this after treatment. I have no family history so my oncologist wants to make sure Im not the first in the chain. I have a sister, niece and 2 boys of my own. I would rather they know the possibilities.
Im heading into round 2 on Tuesday, and hoping it goes as smoothly as the first. What chemo are you on Susan? Im scheduled for 6 rounds FEC x3 Tx3. With neulatsa injections.
Enjoy your week xo Christie.
Hi ladies, I hope your all feeling as positive as possible even though it's an up hill battle to do so at times.....I am day 6 after chemo & I must say I am thankful that i've basically sailed though number 1...i've had a few joint pains in mainly my feet and ankles and ulcerated mouth which panadol rapid soluble is marvelous for it :-) I've just had to take all my jewelery off as my ear rings and neckless even though gold is causing a very itchy welt of a rash :-s Oh & the scap....hahaha...I have to laugh to myself about it otherwise I may crash & burn at the thought that my hair folicules dying...the itching is unbelievable I now know how a flee ridden dog feels :-D I'm not actually sure when the hair starts to fall out but I too will be doing the number 1 or 4 with the clippers when it's time, I think the chemo nurse said at around day 10 it all starts to happen & then I'll cross that bridge when I come to it though! The test results are back from the familial genetic group it only took 2 weeks but I don't find out the results until September 1st a great way to start spring off isn't it. I could have found out last thursday but I had my 1st round of chemo so that was that. I'm not too sure how I feel about finding out the results but I think it's best considering I have 4 daughters and 2 sons for their sakes to find out for sure, but once again I'll cross that bridge when it arrives! I'm insistant that I stay as positive as can be as I don't intend to let this major hiccup bring me down it's just another learning curve in the road of life and I do intend to learn from the experience as much as I can! I hope you girls are the same!
Brightest Blessings, Susan xx