Hi all, I am coming up to my 3rd chemo of EC this coming wednesday. I can not wait for chemo to finish but I have another 14 rounds to go. I find the actual chemo doable but not the needles. Heres hoping that one day it will all be taken in the form of a small tablet! I went into this ready to do what it takes but its turned out harder than i thought. The research I've done on Triple negative isnt very promising either. Its alot to take in at the moment but I know I just have to do it.

I was diagnosed with TNBC last March had lumpectomy and sentinel node . No lymph involved. Had 4 rounds TC and 6 1/2. Weeks radiation . There is a group on here which is great . Also there is a print out on TNBC as well. I was overwhelmed by my diagnosis but was good to get on here and talk to other ladies with TNBC . Good booklet available from a English site helped me a lot as well. Wishing you all the best. Hard we don't have any other treatment other than chemo and radiation but hoping they find more treatments soon. All the best Deb

Big hugs Narelle... Keep on keeping on. It will be over before you know it xxxx

Hi Narelle I was also diagnosed with TNBC August 2011 and operated in Spetember 2011. After 4 rounds of chemo and the radiation for 33 days. I had probelms with finding veins they can inject to and I am so scared of needles.I had no lymph node involvment either. I found if I read that was in the internetc I was going to go crazy. But I read many things anyway. These days most people recover. Lots of rest between help. I found work helped me to keep my mind off the little nagging things but depends on each person. Wish you the very best. It is hard we don't have a tablet that we can take for this. I did radiation before chemo and found even that along made me tired. May be the drive to the hospital before work early in the morning :) Good luck with it Keep your chin up it finishes and then you can start recovering. Chamini I found a book from the US site that simplified everything

Hi Narelle, I went through surgery, chemo and radiation when I was 42, for triple negative breast cancer. It was a very scary time and I read far too much on the internet. I was lucky enough to go to the National Breast Cancer Summit in Melbourne and I listened to Dr Fran Boyle. She said that her opinion was that Triple Negative was a fairly new term and the statistics available were from a fairly small sample of people. It has been a hard road back after cancer but I try to look on it as a positive experience. I learnt so much about myself and got to meet some great people. It was a wake up call for me in many ways. Good luck with it all Narelle and keep posting on here - that was my lifeline! Mel

Triple Negative battle | BCNA Online Network

48 Replies

paulag
Member
13 years ago
That would be great. Would love to meet up sometime. X
Deeay
Member
13 years ago
Hi Narelle!

Welcome to the club noone wants to be a member of!

I was diagnosed with TNBC in 2011 after having a lumpectomy for Oestrogen +ve BC in 2009. It was a bit of a shock to have it come back as I'd had Chemo and radiation! So this time I could only have chemo.

I did 6 rounds of Taxotere and Carboplatin after a bi lateral mastectomy. It was brutal! The only thing that kept me going was knowing that it got easier as each 3 week period went by. I was so sick for the first week and a half or so but managed to get at least a week in where I felt so so and could do stuff.

14 rounds of chemo is huge so be positive that it will do the job! What is EC?

Try not to google too much Narelle. All the research is old. The statistics for us gals is going to much better when they are published in 5 years or so! Things are improving all the time. I did find the Triple Negative Foundation in the US a great resource though and they had a good blog too.

http://www.tnbcfoundation.org/

All the best!!!

Diane
Deeay
Member
13 years ago
Hi Narelle!

Welcome to the club noone wants to be a member of!

I was diagnosed with TNBC in 2011 after having a lumpectomy for Oestrogen +ve BC in 2009. It was a bit of a shock to have it come back as I'd had Chemo and radiation! So this time I could only have chemo.

I did 6 rounds of Taxotere and Carboplatin after a bi lateral mastectomy. It was brutal! The only thing that kept me going was knowing that it got easier as each 3 week period went by. I was so sick for the first week and a half or so but managed to get at least a week in where I felt so so and could do stuff.

14 rounds of chemo is huge so be positive that it will do the job! What is EC?

Try not to google too much Narelle. All the research is old. The statistics for us gals is going to much better when they are published in 5 years or so! Things are improving all the time. I did find the Triple Negative Foundation in the US a great resource though and they had a good blog too.

http://www.tnbcfoundation.org/

All the best!!!

Diane
chamini
Member
13 years ago
sorry meant to post this last time Narrelle

http://www.tnbcfoundation.org/understandingtnbc.htm

Since I was living away from my family at the time I found this very useful. Especially to explain what is going on to my parents
chamini
Member
13 years ago
sorry meant to post this last time Narrelle

http://www.tnbcfoundation.org/understandingtnbc.htm

Since I was living away from my family at the time I found this very useful. Especially to explain what is going on to my parents
Paula_O
Member
13 years ago
Hi Paula,

I am often down Bunbury way, as my extended family live there, including my Aunty who was diagnosed one year after me. If I am ever down that way I will message you, and please if you ever in Perth, please let me know.

Regards

Paula O
shereejoy
Member
13 years ago
Thanks Paula... It's so real this time
paulag
Member
13 years ago
Hi, I live in australind near bunbury. Would love to catch up if you are ever down this way x
shereejoy
Member
13 years ago
I have never had a mammogram pick anything up with my dense breasts. Thankyou for the prayers lovely x
Paula_O
Member
13 years ago
So sorry to hear of your 2nd diagnosis, it is always a nagging concern for all of us. Wishing you all the best with your treatment. Take care. Paula O

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