treatment plan appointment with my surgeon cancelled

Hi There,

I thought I might be getting somewhere when my breast nurse called me yesterday as she found out that apparently my case was discussed last Thursday but my dr didn't know and wanted me to make an appt to see him today but his receptionist hadn't spoken to him yet as he is in surgery this morning so I have to wait until this afternoon when she calls me back to let me know what is going on it's all so confusing for me as I might have to have more surgery as my lymph node had cancer in it and a Metestatic Carcinoma of 13mm in it so I'm a bit worried about that but apparently it hadn't escaped into the blood stream but it might be in other nodes My bc hasn't even been staged by the doctors yet my tumors were but not my bc they just refer to it as Early Breast Cancer I just want it staged allready sorry if I'm venting to you but I'm so frustrated.

Lots of Cyber Hugs

Anitaxx

Hi Tracey,

I was okay with the waiting as there's nothing I can do about it but later that day I rang my Breast Nurse so she wouldn't call me when I wasn't going to see Dr. Treacy and she'd seen my Pathology report and was concerned because I had Cancer in my Sentinal Lymph Node and that I shouldn't have to wait anyway she left a message for the surgeon on his mobile and she called me yesterday afternoon with a message to make an appt to see the doctor tomorrow as my case was apparently discussed and he wants to see me so I rang his office and his receptionist hadn't been informed by my dr to make an appt for tomorrow so I have to wait until she calls me this afternoon as he's in surgery all morning it's all so confusing but I'll have an answer this arvo, I'm really concerned about if the cancer has gone to other Lymph Nodes if that happens my bc will get moved up a stage again, I know I'll get through this and that there is light at the end of the tunnel but I was so happy that I was getting somewhere now the frustration has set in again, I can't talk to my mother in law about it as she allways gives me the impression that It's no big deal to her and I can't be bothered as I have immense support from my husband, some family  and my friends at the school are amazing and if it wasn't for the ladies on here I would have truly lost my mind by now.

Take Care

Anitaxx 

Hi Robyn,

I was concerned about the waiting also but my Breast Nurse told me as long as they start Chemo within 3 months of Surgery it's ok but My Lymph node is what has my family worried and also Sineade my Breast Nurse I might have to have more surgery I just don't know as yet but I'm doing okay how are you keeping?

Thanks Anitaxx

It is scary and frustrating when you are handed a delay like this.  I have asked many questions over the time since my first unwanted tenant first arrived and the answer continues to come back the same - that it appears that evidence shows that a couple of weeks delay will not make any difference to the outcome..  If there is indeed any microscopic little guys hanging about then the chemo will be equally effective today or in a few weeks..

I am sorry that your daughter has not asked any further questions..  It can be so very hard for the entire family..  It can be hard to continue speaking about it..    I hope she comes around really soon as I am sure it will not only be great for you but of great benefit for her too.

In your 'limbo' time take advantage of it and prepare some meals for the freezer so when you have days during treatment that you just do not feel up to it you can use your "quick draw card" and pull some yummy magic from the freezer..  and just spend some you time and enjoy yourself .

sending huge Turtle HUGS your way Anita and hope they sort you out soon so the treatment plan can get moving xoxoxoxoxoxo

That sucks Anita, the waiting will be making you more anxious. I live in a remote area and this extended the waiting time for me, so I do understand how stressful this is for you. My husband and I made a list of all the questions we wanted answered, and this really helped in the planning process. I hope that this helps, and that you find out the information that you need. Take care of yourself in the meantime, Tracey B ??

The waiting is the worst,and it seems to happen to most of us.My surgeon told me that a few weeks makes no difference.Of course there are ladies that it would make a difference to,but I just mean for the majority.Try not to stress and put your energy instead into preparing for treatment.Perhaps cook and freeze some meals,spring clean the house,do something special with your daughter,and concentrate on good nutrition and exercise,because it definitely helps when the time comes to have chemo.When I knew that I was going to be having chemo ,I went shopping with my daughter and bought a special 'chemo' tote bag.I bought things like crossword books,lip balm,a GOOD water bottle, packs of snacks like dried fruit and nuts,a journal just for chemo,and so on.Perhaps this is something that you could do to fill in the time.Stay in touch.Cheers Robyn .xox