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Lvlw's avatar
Lvlw
Member
8 years ago

To MRI or not for first post-diagnosis scan

hi, i'm 46 and was diagnosed with in-situ and invasive lobular cancer in my right breast in november (multi-centric and multi-focal, grade 3, ki67 23%, er/pr+ / her2-). i've had neo-adjuvant chemo, a skin sparing mastectomy and am in my second week of radio therapy. i was pre-menopause prior to chemo and i have no family history of breast cancer that i know of, although i do of other cancers. i am hoping to have DIEP reconstruction once i've recovered from radio. i will be undergoing genetic testing to help inform the decision re. removal of my left breast. 

i had no indication that i had cancer (i decided to go for a mammogram as part of a general check-up) and the mammogram only identified one area of concern in my right breast. my follow-up ultrasound showed that it was multi-centric and multi-focal. my breast surgeon commented that Breastscreen had "done well" to spot my cancer as i had very dense breast tissue and it was quite difficult to see the cancer even on the ultrasound, particularly because of the way invasive lobular presents itself. it wasn't until my MRI that the full extent of the cancer was confirmed (being larger than thought from the ultrasound).

discussions at the early stages of diagnoses with my breast surgeon and my medical oncologist were always that i would have MRIs of my left breast in the future. however, since my surgery my breast surgeon has said that she would advise against an MRI as my breast density will have changed as i am classed as menopausal. while i haven't had a period since the second session of chemo (of 6), I have had no other tests to determine this. she has given me a referral for a mammorgram and ultrasound for my left breast.

i had started to view an annual breast MRI as a safety-net of sorts and it truly terrifies me not to be having it (on top of the general terror of just even thinking about my first post-diagnosis check-up).

i have complete confidence in my breast surgeon, but would appreciate the thoughts of others who may have had a similar experience, or would generally like to comment and share their thoughts :):smile:

thank you!

lvlw 
xxx  

12 Replies

  • Hi again, @Lvlw. MRI has never been suggested to me despite having dense breasts (the 2nd category, not extremely dense). I was diagnosed at 49, and chemo quickly threw me into menopause.  Almost 3 yeast later, and my breast density hasn't budged. Even if breast density were to change, it wouldn't happen immediately. 
    In terms of being menopausal, ask about bloods to check hormone levels next time you see your medical oncologist.  I had blood tests for this every 3 months for the first year after chemo, to be sure that I stayed in the menopausal range
    Take care, 
    Lyn 
  • @Lvlw it is a daunting situation there is no doubt about it! I've been on this path now for 7yrs and 2 diagnosis. My original was DCIS detected by Mammogram and ultrasound which I had been having for about 3yrs prior. I did not have a lump at all and it was small, I had a lumpectomy. I had to have radiation and was pre menopausal at the time and put on Tamoxifen, but at my yearly checkup at the 4yr mark I had a recurrence in the same spot, in the scar tissue. I underwent more surgery, chemo and put on Arimidex. Chemo threw me into menopause and dependent on your age if it has stopped it Id say you are now menopausal as thats what Chemo does and its not pleasant as its not natural.

    I've never had MRI's I did however after my 2nd diagnosis have to have full body scans the works and all was clear. I had lymph nodes removed which also were clear. 1yr post treatment I still only have a mammo and ultrasound, and theres never been mention of an MRI ever, I dont know that it would be common. I had a single mastectomy/diep flap recon in Feb 2017 1yr after treatment as prevention and the revision surgery 5 months later. I'm still on 6 monthly visits between my Surgeon and Oncologist but hoping after 3yrs clear now I will be put onto yearly visits. 

    I had a bone density scan after chemo too as I developed osteoporosis thanks to treatment, Ive been on 6 monthly prolia injections since and had a marked improvement :) 

    None of it is easy, maybe someone else has other experiences with MRI's but I've never had 1 in 7yrs with my constant monitoring. xx Melinda