Hi Kerry66 So sorry you are here. Its a f&^%$**g horror bus ride. I was thrown onto the bus last May and found myself here. I opted for a full mastectomy with no reconstruction. A few weeks after my surgery I found myself under the knife again for a full aux clearance as they had found "a tiny amount of cancer", as my surgeon said, in two of my lymph nodes. My second surgery came back all clear. Unfortunately, or fortunately, I ended up in "the grey area" of to have chemo or not. This was a huge decision and it was one that needed to be made within a set time, yet my mind was not in a good place. I had just been through 12 months of being the main carer for my mother in law who had ovarian cancer. I took her to chemo appointments, doctors appointments, was caring for her by doing her housework and groceries etc, while trying to keep my business functioning and run my own house and look after my family. She was my best friend who I absolutely idolised. She passed in May and one week after her funeral I was diagnosed. I was up to date with my mammograms...I wasnt due for my nest for 12 months. I had just reconnected with my sister after 45 years and she told me she was a breast cancer survivor, so on my routine doctors appointment for something trivial, I passed this info onto her. She said "do you want to go and get a 3d mammogram and then we can put this to bed?". Bingo...2 hours later I was told I had breast cancer.
So after 2 opinions from two oncologists, I was still sitting in the grey area. Everyones dx is different based on path reports etc. So an informed decision needed to be made. I opted out of chemo because my dx just wasnt clear cut that I would actually benefit from it. If I was told my dx was most certainly needed chemo...well I would have taken a seat.
I still dont know if Im one of the lucky ones or not to be placed in the grey area...but I am happy with my decision based on info given by two seperate oncologists.
Almost 12 months on, I have been on Tamoxifen for 6 months coupled with Zoladex (ovarian suppression) and now Im on Letrozole with Zoladex injections. Im 52 and honestly dont have any side effects that are worth complaining about. The hardest part for me over the last 12 months has not been physical...its been mentally horrific. I have crashed and burned quite a few times...but these days I see more sunny days.
Did I make the right decision? I dont have a crystal ball. Will it come back? I dont have a crystal ball. If I did chemo could it come back anyway? Will my medication stop a recurrence? Will it come back anyway? The questions are a mile long..but Im still comfortable with the decision I made based on all the information for my diagnosis. XO