tnbc awareness group
Hi I was diagnosed with triple neg in August 2011, I could not find much information that was good or relevant to tnbc. I started a support group as I felt I was alone in this diagnosis for example I went to a BC support group, 42 women there and no-one had heard of triple negative. I started the group with a lucheon launch on 3.3 in 2013. This was the same day as the launch of triple negative foundation luncheon in America. I asked their permission and they allowed me to use the same advertising logos as theirs. While we are not afiliated with the foundation in Americal they have been supportive in helping to get started. We held our second Luncheon in 2014 BCNA have also given a lot of support in the process. I am in Brisbane and we now have a face to face group an E-mail group, Facebook page and BCNA support page. As the group has been now going for 2 years we have 52 memebers. We provide newly diagnosed women with a support basket with lots of nurturing products, also a coffee meeting. Word has spread and donations have been coming in toenable the continuation of this. We were also lucky enough to have an information evening with a surgeon and oncologist which we will do each year nutrician evenings etc. We are also hoping to have the web page up and running by the end of the year.
WE WOULD LOVE TO HAVE OTHERS START TRIPLE NEGATIVE AWARENESS GROUPS IN OTHER PARTS OF AUSTRALIA SO WE CAN CELEBRATE THE SAME LUNCHEON AND OTHER EVENTS. ALSO BECOME MORE NOTICABLE WITHIN OUR AWARENESS CAMPAIGN.
Contact me with your interest
Lynda Kendall
