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I haven't been on here for quite a few months as I was super unwell with chemo, (that's a story in itself) My chemo has come to a close now due to many side effects etc, so now I move to th...","body@stringLength":"1198","rawBody":"Hi all. I haven't been on here for quite a few months as I was super unwell with chemo, (that's a story in itself) My chemo has come to a close now due to many side effects etc, so now I move to the next phase Radiation. While I have the info all laid out in black and white, its always helpful to hear from you all on any thing that made your treatment more manageable or not. I have 6 weeks of this to look forward to, plus I'm told they will also be targeting my lower neck, that was bit of a surprise to me, as I was on the understanding it would be left breast and left arm pit from. I suffer from dermatitis too just to add in another layer of pain, so I do react to many different lotions. I did ask about this special skin plaster that's like a film they can lay over the area to also protect the skin, (they don't use it at where I'm being sent to)
So asking nicely if anyone out there may have some helpful tips or tricks they found that worked for them? I will be driving myself to treatment as I have no other way to get there. Its a short drive thankfully.
Thanks for sharing :) have a great day all","kudosSumWeight":0,"postTime":"2024-04-11T19:00:58.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:130592_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":322},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi all. I haven't been on here for quite a few months as I was super unwell with chemo, (that's a story in itself) My chemo has come to a close now due to many side effects etc, so now I move to the next phase Radiation. While I have the info all laid out in black and white, its always helpful to hear from you all on any thing that made your treatment more manageable or not. I have 6 weeks of this to look forward to, plus I'm told they will also be targeting my lower neck, that was bit of a surprise to me, as I was on the understanding it would be left breast and left arm pit from. I suffer from dermatitis too just to add in another layer of pain, so I do react to many different lotions. I did ask about this special skin plaster that's like a film they can lay over the area to also protect the skin, (they don't use it at where I'm being sent to)
So asking nicely if anyone out there may have some helpful tips or tricks they found that worked for them? I will be driving myself to treatment as I have no other way to get there. Its a short drive thankfully.
Thanks for sharing :) have a great day all"},"Conversation:conversation:130592":{"__typename":"Conversation","id":"conversation:130592","solved":false,"topic":{"__ref":"ForumTopicMessage:message:130592"},"lastPostingActivityTime":"2024-05-25T02:52:31.000-07:00","lastPostTime":"2024-05-25T02:52:31.000-07:00","unreadReplyCount":30,"isSubscribed":false},"ModerationData:moderation_data:130592":{"__typename":"ModerationData","id":"moderation_data:130592","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:130592_1":{"__typename":"Revision","id":"revision:130592_1","lastEditTime":"2024-04-11T19:00:58.000-07:00"},"ForumReplyMessage:message:130620":{"__typename":"ForumReplyMessage","id":"message:130620","conversation":{"__ref":"Conversation:conversation:130592"},"author":{"__ref":"User:user:1100"},"revisionNum":1,"uid":130620,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: tip or tricks on getting through radiation?","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:130620"},"parent":{"__ref":"ForumTopicMessage:message:130592"},"body":"hi @GinGin Thanks for your positive message, I'm sorry to hear your clinic dint offer you a discount code, as its so very expensive and it comes recommend by the professionals, yet we have to pay with no help or subsidy's for this cream that is part of our treatment.
I'm so over my radiation centre here in Brisbane, and I have not even started the treatment, the nurses are just as bad as my rude little miss snotty rad oncologist Dr,
I pretty much flipped out at my rad tech who dose the treatments and appointment's when he called me back as I had left a message to ask more questions, he is the only one who seems to see me and listen to me, so I told him what I thought about my so called dr, and how I wont see here at all during my treatment as I don't trust her at all. clearly that got passed back to the dr, who then rang me, so I let her have it, saying how she completely dismissed my concerns about the heart, to which she finally acknowledge she had, and offer me another Dr if I wanted one, as as she sated you have to have a god repour with your dr, I bit my tongue but in my head it was like well we certainly do not have that! Said that she would happily transfer me, then corrected her self with oh not happily, but I will transfer you if this is what you would like. Told her I would think about and let her know, when I come in for treatment. I'm now not to afraid to let her have it, maybe no one has ever called her out before.
The nurse who's also a right royal B.... towards me, very loosely pointed to her self to said this is where you have to put the cream, then asked what deodorant I use, was it a spay or roll on, but never explained why, just wrote something on paper, never advised me I couldn't use these as they contained metals, found that out through DR Google, thanks so much. This treatment place is just ............................ no words I have no words left at all.
Thankfully everyone on here has been super helpful with their advice and support, and Ill check in with my own GP and the surgery nurses to see if I can pop in for check ups with them, to avoid the clowns that have been assign to me from this radiation centre.
Ill be cutting open that tube of that cream and scrapping the sides to get every inch of the cream out. as its so costly, it was like 1/2 my food money for the week, so as it was spoken about in the webinar etc, barriers for treatment, is costs, and well this is a cost we have to have spend.
It would be wonderful if the hospital I attend, who are great, had the service like some of the others that are offered in other states, that have been spoken about with Exercise Physios, or if my hospital knew of other places to recommend you to, but thankfully to my other post, I have now made contact with a place who can offer such a programme. So I'm very grateful
Thank you for all your stretching tips, Ill make sure I remember those, I'm a big yoga fan, so I guess Ill get some stretching in, while under going this treatment,
Mine to is my left breast, last time I used Moo Goo I broke out as it caused my dermatitis's to go nuts - just found a 1Ltr of sorbloene cream on special at Coles for $5.50 today in the shopping, small win. but ill take it.
Ill let you all know how I get on.
","body@stringLength":"3472","rawBody":"hi @GinGin Thanks for your positive message, I'm sorry to hear your clinic dint offer you a discount code, as its so very expensive and it comes recommend by the professionals, yet we have to pay with no help or subsidy's for this cream that is part of our treatment.
I'm so over my radiation centre here in Brisbane, and I have not even started the treatment, the nurses are just as bad as my rude little miss snotty rad oncologist Dr,
I pretty much flipped out at my rad tech who dose the treatments and appointment's when he called me back as I had left a message to ask more questions, he is the only one who seems to see me and listen to me, so I told him what I thought about my so called dr, and how I wont see here at all during my treatment as I don't trust her at all. clearly that got passed back to the dr, who then rang me, so I let her have it, saying how she completely dismissed my concerns about the heart, to which she finally acknowledge she had, and offer me another Dr if I wanted one, as as she sated you have to have a god repour with your dr, I bit my tongue but in my head it was like well we certainly do not have that! Said that she would happily transfer me, then corrected her self with oh not happily, but I will transfer you if this is what you would like. Told her I would think about and let her know, when I come in for treatment. I'm now not to afraid to let her have it, maybe no one has ever called her out before.
The nurse who's also a right royal B.... towards me, very loosely pointed to her self to said this is where you have to put the cream, then asked what deodorant I use, was it a spay or roll on, but never explained why, just wrote something on paper, never advised me I couldn't use these as they contained metals, found that out through DR Google, thanks so much. This treatment place is just ............................ no words I have no words left at all.
Thankfully everyone on here has been super helpful with their advice and support, and Ill check in with my own GP and the surgery nurses to see if I can pop in for check ups with them, to avoid the clowns that have been assign to me from this radiation centre.
Ill be cutting open that tube of that cream and scrapping the sides to get every inch of the cream out. as its so costly, it was like 1/2 my food money for the week, so as it was spoken about in the webinar etc, barriers for treatment, is costs, and well this is a cost we have to have spend.
It would be wonderful if the hospital I attend, who are great, had the service like some of the others that are offered in other states, that have been spoken about with Exercise Physios, or if my hospital knew of other places to recommend you to, but thankfully to my other post, I have now made contact with a place who can offer such a programme. So I'm very grateful
Thank you for all your stretching tips, Ill make sure I remember those, I'm a big yoga fan, so I guess Ill get some stretching in, while under going this treatment,
Mine to is my left breast, last time I used Moo Goo I broke out as it caused my dermatitis's to go nuts - just found a 1Ltr of sorbloene cream on special at Coles for $5.50 today in the shopping, small win. but ill take it.
Ill let you all know how I get on.
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