Forum Discussion
Maree72
11 months agoMember
Hi @FLClover, thanks for your thoughts, I had done a lot of research about the Mepitel the film dressing last time when I was sent to radiation, but chose not to go through with it, that's another story in its self, and a choice I'm now trilled I made along with the new medial team, due to the stuff up 1st time round with the first medical team leaving behind the cancer in the lymph nodes and giving me a false neg result, anyway, enough of that...
When I asked my Rd onc Dr (little miss snooty woman) about the film dressing it was a hard NO as we live in QLD and the film doesn't stick to the skin up here very well due to the humidity, its like now May and summer has finished with those horrible temps and humidity, so it was this StrataXRT or a sorbolene cream from the chemist maybe moo goo that I react to.
Anyway its arriving today via the post, so I'm at home waiting for it as I have to sign when it arrives, I'm truly hoping it is only the 1 tube I need, as I was told i possibly could go through 1-2 tubes, but at $136 odd dollars a pop, ill be scraping the tube dry to use every last bit.
I am just disappointed & frustrated that something that they want us patients to have for our treatment, they don't help out with the cost at all, like cancer has already robed us all of so much lets just add more into the hole dam mess.
I did ask little miss snotty Dr if this was because I was a public patient, and not a private one, was told no we make all our patients buy their own. not even a sample to given only patched tested with by snotty nurse who looked down on me too, such a delightful woman she is too.
Then asked me what deodorant I use, (brand) when I told her it was a roll on and Nivea was the brand, she just looked at me, said nothing, wrote something down, it wasn't till I again did my research coming home to find out deodorant with any metals in them as most of them contain this, can not be used, well my delivery for my new deodorant that is all natural arrived to today too, wasn't expecting to have to get a different deodorant , nor was I expecting to be told that I can not wear one, like this is my personal hygiene, so I went searching ingredients and all things natural in deodorants that would keep me going over the next 6 weeks.
@Julez1958 & @cactusk thanks for sharing your experience with the StrataXRT, I'm hoping ill experience the same as you, being protected and only slight pinkness - mine is my left breast, so I'm doing the hold the breath system as well as its directly over my heart and lung, I'm already accepting the fatigue as I'm still suffering it from the chemo, so I guess it will just be an add on to what I'm going through already.
I'm on the count down now till Monday coming, when this gets started, and hopefully I can say its all over and done with and not look back.
I also tried addressing my huge concern about the risk to the heart and the possible damage, as my mother passed away of a heart attack at age 57 once month before her 58th birthday 19 years ago now, and after her passing we learnt she had just recently been out onto heart medication, none of us knew about it at all as she had kept it from us,
But again little miss snotty Oncologist radiation Dr didn't want to know or even reassure me or anything, so I guess ill just have to wait and see how ill come out of this in years to come.
again she chose to ignore my concerns and not say a thing.
I truly hope no one has to also experience this DR and her shocking dismissive behaviour, as its not helpful or any way reassuring as a breast cancer patient who just wants to get through this dam health issues and come out the other side in one piece.
When I asked my Rd onc Dr (little miss snooty woman) about the film dressing it was a hard NO as we live in QLD and the film doesn't stick to the skin up here very well due to the humidity, its like now May and summer has finished with those horrible temps and humidity, so it was this StrataXRT or a sorbolene cream from the chemist maybe moo goo that I react to.
Anyway its arriving today via the post, so I'm at home waiting for it as I have to sign when it arrives, I'm truly hoping it is only the 1 tube I need, as I was told i possibly could go through 1-2 tubes, but at $136 odd dollars a pop, ill be scraping the tube dry to use every last bit.
I am just disappointed & frustrated that something that they want us patients to have for our treatment, they don't help out with the cost at all, like cancer has already robed us all of so much lets just add more into the hole dam mess.
I did ask little miss snotty Dr if this was because I was a public patient, and not a private one, was told no we make all our patients buy their own. not even a sample to given only patched tested with by snotty nurse who looked down on me too, such a delightful woman she is too.
Then asked me what deodorant I use, (brand) when I told her it was a roll on and Nivea was the brand, she just looked at me, said nothing, wrote something down, it wasn't till I again did my research coming home to find out deodorant with any metals in them as most of them contain this, can not be used, well my delivery for my new deodorant that is all natural arrived to today too, wasn't expecting to have to get a different deodorant , nor was I expecting to be told that I can not wear one, like this is my personal hygiene, so I went searching ingredients and all things natural in deodorants that would keep me going over the next 6 weeks.
@Julez1958 & @cactusk thanks for sharing your experience with the StrataXRT, I'm hoping ill experience the same as you, being protected and only slight pinkness - mine is my left breast, so I'm doing the hold the breath system as well as its directly over my heart and lung, I'm already accepting the fatigue as I'm still suffering it from the chemo, so I guess it will just be an add on to what I'm going through already.
I'm on the count down now till Monday coming, when this gets started, and hopefully I can say its all over and done with and not look back.
I also tried addressing my huge concern about the risk to the heart and the possible damage, as my mother passed away of a heart attack at age 57 once month before her 58th birthday 19 years ago now, and after her passing we learnt she had just recently been out onto heart medication, none of us knew about it at all as she had kept it from us,
But again little miss snotty Oncologist radiation Dr didn't want to know or even reassure me or anything, so I guess ill just have to wait and see how ill come out of this in years to come.
again she chose to ignore my concerns and not say a thing.
I truly hope no one has to also experience this DR and her shocking dismissive behaviour, as its not helpful or any way reassuring as a breast cancer patient who just wants to get through this dam health issues and come out the other side in one piece.