Hi, I have not contributed to a Blog before, but am looking forward to this support. I was diagnosed with Triple negative BC in October 2008 then Advanced BC in September 2011. We have 2 wonderful children, one completing her final yr 12 in school and a son in yr 11. We live in a country centre and travel every 3 weeks to Perth at the moment for chemo. I have had 8 rounds and number 9 will be in another few weeks. I am particularly interested to hear from anyone that might also be triple negative ABC. Thinking of you all!Tina P

Hi Tina, glad to see you reach out here for support, sometimes u can feel a bit isolated living in country areas. I too live in a amll community and travel 50 mins every 3 weeks for my treatment (plus every time there is a scan or other appt). I was diagnosed in dec 2009 with 2 lumps (grade 2 & grade 3) then 6 weeks later discovered spread to the lungs and liver. Have been on perpetual treatment since..Her2+ so at least i have been able to have herceptin (growth inhibitor) and that held things at bay after the taxotere (feb 2010-8 doses-yuk!!) until May 2011, then we found spread to the brain, so whole brain radiotherapy, then oral chemo (which stopped working after about 4 months)..now on carboplatin + abraxane (2 chemo drugs) and herceptin all via port infusion since xmas time..having a scan next monday so will get to see if it is working..my profile is set to public view so feel free to get a more detailed peek if u wish.. there are plenty of women here rready to support u when u need to ask questions, vent ur feelings or just want to wish everyone a happy day :) We have a daughter who is 15 and twin boys (almost 8 now)..they seem to be all coping well, but we do have a family counsellor and Marissa sees her on her own too..couldn't get by without that professional support too.. Hope you and your family are 'living' as well as u can with this horrid disease, just as we feel we are..we say yes to a lot more fun things and no to more things we don't want to do (if we have the choice!!) Looking forward to seeing you around here Sam :)

Hi Sam It is really nice to see someone check in on me. As I said, "I'm new to blogging". I feel blessed to be able to work. I'm working today. I am a Speech Pathologist and have my own private practice which is now operating on a much reduced capacity - which is just lovely. I am on my lunch break now, so won't chat long. Just wanted to say 'hi' and 'thanks' for touching base. I will keep you in my prayers as you await your scan results. in the meantime I admire the way your reach out, see the humour at home (with your kids) and clearly continue to see the positive side of life. Good for you! Keep enjoying those moments...so precious. Tina

Hi Tina I just wanted to drop you a line to say hi and welcome :-) I do not have triple negative BC but I do have BC. I also have to travel to Perth currently for my chemo. I am also from the country on the coast and travel 4 hours to Perth. I wish you all the very best on this journey you have to be on and please know we are all here for you. LOL Mich x

Tina P | BCNA Online Network

14 Replies

Tina_P
Member
14 years ago
Hi Mich

We are in Busselton. I have trouble with my password, but thanks to Daina seem to be ok now.

Tina
Tina_P
Member
14 years ago
thanks Daina. I'm back in. I like the easy password. Should be right now.

Tina
KymB
Member
14 years ago
Ha!! I just responded to you, but ended up messaging myself!!! LOL :)
KymB
Member
14 years ago
Yep - we've probably all done that a few times - I still don't always get the messaging right - but it doesn't matter - we get there eventually. It's a great way to be in touch.
Mich_x
Member
14 years ago
Hi Tina

I am North. We are 65-70 klms south of Geraldton. What about you?

Mich x
Tina_P
Member
14 years ago
Hi Kym

Thanks for saying Hi. I'm still learning my way around the site...each time, i'm wondering if my messages are getting where they are intended. I have successfully messaged myself already! Anyway, thanks...I am familiar with PATS have used them since 2008.

Nice to be meeting a few ladies this way.

All the best

Tina
Tina_P
Member
14 years ago
thanks for your comment & encouragement Mich. Are you North or South of Perth?

Tina