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Tina_P's avatar
Tina_P
Member
14 years ago

Tina P

Hi,

I have not contributed to a Blog before, but am looking forward to this support.

I was diagnosed with Triple negative BC in October 2008 then Advanced BC in September 2011. We have 2 wonderful children, one completing her final yr 12 in school and a son in yr 11.

We live in a country centre and travel every 3 weeks to Perth at the moment for chemo. I have had 8 rounds and number 9 will be in another few weeks.

I am particularly interested to hear from anyone that might also be triple negative ABC.

Thinking of you all!
Tina P

14 Replies

  • Hi Tina

    While I'm not a triple negative BC or even country based, I was online, so just wanted to drop you a line to say hi.  The online network is a great forum to 'chat'. 

    I'm not sure if this would apply to you, but it might be worth you having a look on the BCNA website at the Fact Sheet on Patient Assisted Travel Schemes.  The link is: http://www.bcna.org.au/sites/default/files/bcna_fact_sheet_pats.pdf

    All the best Tina and stay in touch ... when you feel like 'chatting'.

    Cheers
    Kym

  • Hi Tina

    While I'm not a triple negative BC or even country based, I was online, so just wanted to drop you a line to say hi.  The online network is a great forum to 'chat'. 

    I'm not sure if this would apply to you, but it might be worth you having a look on the BCNA website at the Fact Sheet on Patient Assisted Travel Schemes.  The link is: http://www.bcna.org.au/sites/default/files/bcna_fact_sheet_pats.pdf

    All the best Tina and stay in touch ... when you feel like 'chatting'.

    Cheers
    Kym

  • Hi Tina

    I just wanted to drop you a line to say hi and welcome :-)

    I do not have triple negative BC but I do have BC.  I also have to travel to Perth currently for my chemo.  I am also from the country on the coast and travel 4 hours to Perth.

    I wish you all the very best on this journey you have to be on and please know we are all here for you.

    LOL Mich x

  • Hi Tina

    I just wanted to drop you a line to say hi and welcome :-)

    I do not have triple negative BC but I do have BC.  I also have to travel to Perth currently for my chemo.  I am also from the country on the coast and travel 4 hours to Perth.

    I wish you all the very best on this journey you have to be on and please know we are all here for you.

    LOL Mich x

  • Hi Sam

    It is really nice to see someone check in on me. As I said, "I'm new to blogging". I feel blessed to be able to work. I'm working today. I am a Speech Pathologist and have my own private practice which is now operating on a much reduced capacity - which is just lovely. I am on my lunch break now, so won't chat long. Just wanted to say 'hi' and 'thanks' for touching base. I will keep you in my prayers as you await your scan results. in the meantime I admire the way your reach out, see the humour at home (with your kids) and clearly continue to see the positive side of life. Good for you! Keep enjoying those moments...so precious. Tina

  • Hi Tina,

    glad to see you reach out here for support, sometimes u can feel a bit isolated living in country areas. I too live in a amll community and travel 50 mins every 3 weeks for my treatment (plus every time there is a scan or other appt).  I was diagnosed in dec 2009 with 2 lumps (grade 2 & grade 3) then 6 weeks later discovered spread to the lungs and liver. Have been on perpetual treatment since..Her2+ so at least i have been able to have herceptin (growth inhibitor) and that held things at bay after the taxotere (feb 2010-8 doses-yuk!!) until May 2011, then we found spread to the brain, so whole brain radiotherapy, then oral chemo (which stopped working after about 4 months)..now on carboplatin + abraxane (2 chemo drugs) and herceptin all via port infusion since xmas time..having a scan next monday so will get to see if it is working..my profile is set to public view so feel free to get a more detailed peek if u wish..

    there are plenty of women here rready to support u when u need to ask questions, vent ur feelings or just want to wish everyone a happy day :)

    We have a daughter who is 15 and twin boys (almost 8 now)..they seem to be all coping well, but we do have a family counsellor and Marissa sees her on her own too..couldn't get by without that professional support too..

    Hope you and your family are 'living' as well as u can with this horrid disease, just as we feel we are..we say yes to a lot more fun things and no to more things we don't want to do (if we have the choice!!)

    Looking forward to seeing you around here

    Sam :)

  • Hi Tina,

    glad to see you reach out here for support, sometimes u can feel a bit isolated living in country areas. I too live in a amll community and travel 50 mins every 3 weeks for my treatment (plus every time there is a scan or other appt).  I was diagnosed in dec 2009 with 2 lumps (grade 2 & grade 3) then 6 weeks later discovered spread to the lungs and liver. Have been on perpetual treatment since..Her2+ so at least i have been able to have herceptin (growth inhibitor) and that held things at bay after the taxotere (feb 2010-8 doses-yuk!!) until May 2011, then we found spread to the brain, so whole brain radiotherapy, then oral chemo (which stopped working after about 4 months)..now on carboplatin + abraxane (2 chemo drugs) and herceptin all via port infusion since xmas time..having a scan next monday so will get to see if it is working..my profile is set to public view so feel free to get a more detailed peek if u wish..

    there are plenty of women here rready to support u when u need to ask questions, vent ur feelings or just want to wish everyone a happy day :)

    We have a daughter who is 15 and twin boys (almost 8 now)..they seem to be all coping well, but we do have a family counsellor and Marissa sees her on her own too..couldn't get by without that professional support too..

    Hope you and your family are 'living' as well as u can with this horrid disease, just as we feel we are..we say yes to a lot more fun things and no to more things we don't want to do (if we have the choice!!)

    Looking forward to seeing you around here

    Sam :)