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Hi Tracey

I agree.  Don't like the term palliative - such a negative connotation.   Doesn't matter what sort of spin they put on it.  I think they need to come up with another word!

My Dr has also never used the word terminal or ever talked about how many months, years etc.  have 'left'.   She has always said she is very hopeful for me - which makes me hopeful.  Hope is a very powerful thing!

Take care

Amy xx

Hi Celeste,

I just think it is horrible that he can't see anything wrong with the way he spoke to you.  If they just read things properly and didn't just skim over things.  I know they have a lot of people to see, but really.  They wonder why they have a bad name around Australia.  Did you hear about the lady that they accidentally put a couple of extra zeroes on her account and she ended up with $2mill. in her bank account.  I don't know how the rest of the story unfolds but I did hear she has been charged or going to be charged with fraud. 

I hope everything else is going okay for you.  I agree with your thoughts on the word terminal.  I have never been told I am terminal as there are options available to me.  i also am not keen on palliative which has been given a revamp of what it means lately as many people wouldn't take it on.  They are trying to make it more appealing and less "end of life".  I still don't like the word though.

Wishing you all the best with everything.

Take care.

Tracey xx

It is a very energy sapping process. Find a friend who has just had a big relationship bust up or something and let them loose on centrelink for some therapy, should do the trick!!

Are you by any chance  a state government employee? If so Vicsuper now has included in the superannuation an income protection scheme. I only found out by accident recently when looking at my statement (I think I was away last year when introduced) and there are "no strings" attached (ie medical assessment) for the basic level. So if you are in VicSuper or even another fund this could be worth investigating.

I have had an ongoing battle with another superannuation company who turned my non preserved benifits into preserved benefits which means I can't get my money. You have to be practically dead before they will release your super on medical grounds. It does ones head in and drains the life energy out of you along the way. I've pretty much given up on it for the moment until I feel ready for another round.

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