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Julie_D60's avatar
Julie_D60
Member
3 years ago

The toll of tests, diagnosis and treatments

Hi,
About a month ago I was diagnosed with breast cancer.  You deal with the shock of the diagnosis with the goal posts kept changing as a result of further testing needed, which for me resulted in a masectomy (about 10 days ago with no spread to lymph nodes). On top of that I had to reduce and come off my HRT. And now that is all faced and gone through I will hear of the final pathology results this afternoon and from what I understand am likely to undergo further treatment to lessen chances of the cancer returning.
It feels a lot to front up to and what is being asked in dealing with it all whilst trying to navigate my options regarding my full-time job (currently on a few weeks leave) and not knowing how my body will react to meds and ability to work.
I understand so many women have to go through this and other women have worse diagnosis and results than mine however it has just felt a bit endless in what you have to face  - you first deal with diagnosis, then the surgery, ceasing HRT but now the long haul of ongoing treatment, which today feels a lot. 
Do others relate and whats been your experience?
  • Hi Julie _D60,
    I can relate to much of what you said.
    I too was on HRT at time of diagnosis. Luckily my hot flushes did not return too badly.
    I was one of the lucky ones.
    Firstly was finding the cancer myself, as I wasn't due for 2 yrly mammogram for another 15months.
    I was also lucky that I did not suffer any serious side effects of Chemo (no nausea at all) or Radiotherapy.
    I was fortunate to have Income Protection  Insurance in my Superannuation, which I used.
    So I suggest that you check to see if you have this. So many people I talk to, do not know that they do have it.
    All the best. Let us know how you go, and which treatments you are going to have 


  • Thanks Julie, you described the initial shock exactly how it felt. In many ways feels a lonely journey but good to hear from other women who have been through it which are now in a different place x
  • Hi from another Julie!
    I am coming up to my two year “ cancerversary” ( date of diagnosis).
    I am 64 ( was 62) and was lucky in a lot of ways as I am semi retired and had the money to go through the private system but as someone said , no one is “ lucky” to get breast cancer.
    I still remember the appointment where my ( lovely  caring) GP broke the diagnosis to me - I had an “out of body “ experience where I was looking down on the consult like it was someone else.
    The stages of grief flow - shock, disbelief, anger,  acceptance and finally moving on - in whatever way you can.
    I didn’t have cancer in my lymph nodes but due to the size of the tumour ( not picked up on a mammogram so I had an extra dose of anger there) I was recommended a mastectomy.
    I decided on a double and after radiotherapy on the cancer breast ( didn’t have to have chemo) I had reconstructive surgery a few months later.
    I certainly cried a lot but these days I try and concentrate on the good things on my life and not sweat  the small stuff.
    There are a lot of amazing resources ion this website and of course this forum is a great place to check stuff out - no one really “ gets it” quite like the ladies on here who have all been through it one way or another.
    Take care🌺
  • Once the pathology is through and treatment plan commenced you may find its not as hard as you thought.
    Best wishes 
  • Glad to hear and good to hear it’s not always doom and gloom! Thanks for replying.
  • Dear @Julie_D60

    I had a mastectomy, 17 lymph nodes removed, six months of chemo, a year of Herceptin and I am in my last year (of 10) of hormonal therapy. Happily, I didn’t get all that advice in one go, right at the start! But once you start treatment, it’s amazing how one thing makes the next a little more acceptable. I had a pretty good run with chemo (worked throughout) , Herceptin alone was a breeze after that and I haven’t had any of the joint pain, flushes etc that is sometimes associated with an AI. Sometimes it all seems quite fresh, but often it seems a lifetime ago. And that’s the point - I’ve had a life for the last ten years, a really good one. I’ve worked at jobs I enjoyed, travelled, had a lot of fun (including with two grandchildren who didn’t exist when I was diagnosed). Am I happy I went through it all? You bet I am. Keep your eyes on the prize. Best wishes.