Forum Discussion
The story so far!
Im 33 and was diagnosed with triple negative grade 3 in my right breast one month ago. I had lumpectomy surgery two weeks ago and had genetic testing yesterday to see whether I have a gene mutation. I am in the process of going through fertility treatment to freeze eggs (just in case chemo has any effect on my reproductive system). I am due to start chemo early May. From what I understand, Chemo will consist of two components - Dore Dense AC fortnightly for six months and Taxane - Pacitaxel weekly for twelve weeks. I am really anxious about chemo but I keep reminding myself that this is not forever and once I get through it I’ll be a stronger and a better version of myself. Depending on the outcome of the genetic test, I will need to consider radiation or mastectomy but for now I think its best I take it one day at a time. Feel free to contact me if you would like to keep in touch and share experiences
3 Replies
Its funny Jennim but my surgeon offered for me to have the genetic testing straight away. I was on such a roller coaster that i decided I could not deal with that straight away so put it off for a little while. After finding today that i am Triple negative have decided it is time to find this out. Will not get the results until after chemotherapy is finished
Hi Amandag....it is good to see that you have genetic testing straight away..my onc put mine off and off and only just getting tested a year out from finishing chemo and rads...pretty annoyed. Am tnbc so worried that I had all that radiation. Where are you getting treatment?
33 is so young! Sorry to hear you have to go through this too. If it helps I can share my experience. I am a bit older, 57 when diagnosed with the grade 3 TNBC. Lumpectomy, 4 weeks to recover then into AC chemo for 12 months followed by Paciaxel every week for 12 weeks. The AC would make me very tired and when I got home, I slept if off. It would take about 9 days to wear out of the system and then I got my energy back again. The Pacitaxel was no problem except my toes got numb towards the end. I carry the gene mutation so had to make decisions about my future but that waited until I had finished chemo. I agree with you about taking it one day at a time. The path rolls out as you take the next step. It did change my life and I'm a better person now too! I wish you a speedy treatment, x
